Evidence map›Paper›PMID 32410681›Full record

ArticleBMC health services research2020

Satisfaction and experiences of patients taking fingolimod and involved in a pharmacy-based patient support program in Switzerland - a qualitative study.

Aline Bourdin, Julie Dubois, Rose-Anna Foley, Myriam Schluep, Olivier Bugnon, Jérôme Berger

Open access · goldAbstract read
In one paragraph

Article in BMC health services research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
0.8field-weighted citation impact, top 25% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 7 citations in OpenAlex.

  1. Article
  2. Article
  3. Effectiveness of an Interprofessional Program (Siscare) for Supporting Patients With Type 2 Diabetes.Diabetes spectrum : a publication of the American Diabetes Association · 2023
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 1 country.

Aline BourdinCommunity Pharmacy, Center for Primary Care and Public Health (Unisanté), University of Lausanne, Lausanne, Switzerland. aline.bourdin@unisante.ch.ORCID https://orcid.org/0000-0002-1331-4557
Julie DuboisQualitative Research Platform, Center for Primary Care and Public Health (Unisanté), University of Lausanne, Lausanne, Switzerland.ORCID https://orcid.org/0000-0001-9241-0231
Rose-Anna FoleyQualitative Research Platform, Center for Primary Care and Public Health (Unisanté), University of Lausanne, Lausanne, Switzerland.ORCID https://orcid.org/0000-0001-5928-2928
Myriam SchluepDivision of Neurology, Department of Clinical Neurosciences, Lausanne University Hospital, CHUV, Lausanne, Lausanne, Switzerland.
Olivier BugnonCommunity Pharmacy, Center for Primary Care and Public Health (Unisanté), University of Lausanne, Lausanne, Switzerland.ORCID https://orcid.org/0000-0003-2249-1245
Jérôme BergerCommunity Pharmacy, Center for Primary Care and Public Health (Unisanté), University of Lausanne, Lausanne, Switzerland.ORCID https://orcid.org/0000-0003-1177-5453
Centre universitaire de médecine générale et santé publique, Lausanne · CHUniversity of Geneva · CHUniversity of Lausanne · CH

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundFingolimod is an oral multiple sclerosis drug that is considered a specialty drug due to its high cost and safety issues. The Fingolimod Patient Support Program (F-PSP) is a specialty pharmacy service developed to ensure the responsible use of fingolimod by promoting patient safety and medication adherence. This study aims to explore the satisfaction, experiences and perceptions regarding the F-PSP among patients currently involved in this program or recently withdrawn.

methodsA qualitative study was conducted via individual, face-to-face semistructured interviews with patients involved in the F-PSP. The interviews were audio-recorded, transcribed verbatim, coded and analyzed via thematic content analysis.

resultsThe main themes identified from the interviews (n = 17) were overall perception of the F-PSP, perception of the pharmacist-led consultations, perception of the tools (electronic monitor and drug intake graph), reasons to participate or potentially withdraw, and suggestions for improvements. Participants perceived the F-PSP as a reassuring support that complemented their medical care, providing a more human, personalized and person-centered approach than usual pharmacy care. Pharmacist-led consultations were valued for the medication-related and holistic support they provided. The importance of the pharmacist's attitude was emphasized. The electronic monitor was valued for promoting daily medication adherence and allowing the involvement of relatives, which reassured participants and their relatives. The participants appreciated the drug intake graph because it provided an objective overview of medication adherence, thereby reassuring, rewarding, and motivating them. The main reason to join the program was to be supported, especially with respect to medication adherence.

conclusionsParticipants were satisfied with the F-PSP, each for different reasons. Their feedback enabled the identification of measures for the optimization of the F-PSP and should facilitate its dissemination and transfer to other drugs/diseases/populations. Essential elements of generic pharmacist-led patient support programs considered valuable from the patients' perspective were identified.

Indexed as

AdultAttitude of Health PersonnelFemaleFingolimod HydrochlorideHumansMaleMedication AdherenceMiddle AgedPatientsPatient SafetyPatient SatisfactionPharmaceutical ServicesPharmacistsProgram EvaluationQualitative ResearchSwitzerlandFingolimod HydrochlorideFingolimodMultiple sclerosisPatient perceptionsPatient satisfactionPatient support programQualitative researchSpecialty pharmacy service

Identifiers

PMID32410681
PMCPMC7227186
OpenAlexW3026099529

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.