Evidence map›Paper›PMID 32400259›Full record

ArticleJournal of geriatric psychiatry and neurology2021

Measuring Awareness in People With Dementia: Results of a Systematic Scoping Review.

Catherine M Alexander, Anthony Martyr, Sharon A Savage, Robin G Morris, Linda Clare

Abstract readScoping Review
In one paragraph

Article in Journal of geriatric psychiatry and neurology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 1 synthesis or guideline pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Catherine M Alexander171002University of Exeter Medical School, South Cloisters, St Luke's Campus, Exeter, United Kingdom.ORCID 0000-0002-0052-9938
Anthony Martyr171002University of Exeter Medical School, South Cloisters, St Luke's Campus, Exeter, United Kingdom.
Sharon A SavagePsychology Department, 3286University of Exeter, Washington Singer Laboratories, Streatham Campus, Exeter, United Kingdom.
Robin G MorrisKing's College 34426Institute of Psychiatry, Psychology and Neuroscience, London, United Kingdom.
Linda Clare171002University of Exeter Medical School, South Cloisters, St Luke's Campus, Exeter, United Kingdom.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAwareness of the diagnosis or related changes in functioning varies in people with dementia (PwD), with implications for the well-being of PwD and their carers. Measuring awareness in a clinical setting could facilitate tailored support and optimize involvement in personal health and care decisions. This scoping review aimed to identify validated methods of assessing awareness in dementia and appraise their clinical utility.

methodA systematic search was conducted of English-language publications that measured awareness in PwD, in 6 electronic databases. Search terms included dement*, Alzheimer*, Pick disease, and awareness, unawareness, anosognosia, insight, denial, metacognit*, or discrepanc*.

resultsWe screened 30,634 articles, finding 345 articles that met our inclusion criteria. We identified 76 measures, most commonly using a discrepancy questionnaire comparing evaluations of function by PwD and an informant. There were 30 awareness measures developed and validated for use in dementia populations but few designed for general clinical use.

conclusionsAlthough we found a range of clinical indications for measuring awareness, there were few studies investigating clinical applications and few tools designed for clinical purposes. Further investigation and development of a person-centered tool could facilitate health and care choices in mild-to-moderate dementia.

Indexed as

AgnosiaDementiaCaregiversHumansSurveys and QuestionnairesAlzheimeranosognosiaclinical tooldenialinsightperson-centered care

Identifiers

PMID32400259
PMCPMC8326902

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.