ArticleParkinson's disease2020
Self-Management Education for Persons with Parkinson's Disease and Their Care Partners: A Quasi-Experimental Case-Control Study in Clinical Practice.
Article in Parkinson's disease, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Effect of patient education interventions on non-motor symptoms and disease outcomes in parkinson's disease: a systematic review.Acta neurologica Belgica · 2025Pooled it
- Systematic review and meta-analysis of clinical effectiveness of self-management interventions in Parkinson's disease.BMC geriatrics · 2022Pooled it
- Trial
- A Systematic Review of Health Literacy in People Living With Parkinson's Disease.Health science reports · 2026Review
- Prevention of cognitive impairment and dementia in people with Parkinson's disease: A call-to-action.Journal of Parkinson's disease · 2025Review
- Centering the person in development of a model of care for people with Parkinson's disease: a qualitative study.Disability and rehabilitation · 2025Article
- EMPOWER-PD: Evaluation of an 8-Week Co-Designed Self-Management Program in People With Parkinson's Disease and Their Caregivers: An Intervention Study With Long-Term Follow-Up.Parkinson's disease · 2025Article
- Self-Management Systems for Patients and Clinicians in Parkinson Care: Protocol for an Integrated Scoping Review, Product Search, and Evaluation.JMIR research protocols · 2024Article
- Caregiver Burden in Parkinson Disease: A Scoping Review of the Literature from 2017-2022.Journal of geriatric psychiatry and neurology · 2024Article
- MoveONParkinson: developing a personalized motivational solution for Parkinson's disease management.Frontiers in public health · 2024Article
- Self-Management Systems for Patients and Clinicians in Parkinson's Disease Care: A Scoping Review.Journal of Parkinson's disease · 2024Article
- Real-World Evaluation of the Feasibility, Acceptability and Safety of a Remote, Self-Management Parkinson's Disease Care Pathway: A Healthcare Improvement Initiative.Journal of Parkinson's disease · 2024Article
- The impact of fatigue severity and depression level on the quality of life in individuals with Parkinson's disease in Taiwan.Frontiers in psychiatry · 2024Article
- Disease modification in Parkinsonism: obstacles and ways forward.Journal of neural transmission (Vienna, Austria : 1996) · 2022Review
- Can behavioural change interventions improve self-efficacy and exercise adherence among people with Parkinson's? A systematic review protocol.HRB open research · 2022Article
- Parkinson's disease in primary health care and nursing care: a scoping review.Revista da Escola de Enfermagem da U S P · 2022Article
- Using an economic evaluation approach to support specialist nursing services for people with Parkinson's in a regional community.Journal of advanced nursing · 2021Article
- Quality of life and unmet needs in patients with chronic liver disease: A mixed-method systematic review.JHEP reports : innovation in hepatology · 2021Article
- Current Knowledge on the Evolution of Care Partner Burden, Needs, and Coping in Parkinson's Disease.Movement disorders clinical practice · 2021Review
- Promoting Self-Care in Nursing Encounters with Persons Affected by Long-Term Conditions-A Proposed Model to Guide Clinical Care.International journal of environmental research and public health · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundParkinson's disease is a neurodegenerative condition with both physical and mental consequences that affect many aspects of everyday life. Persons with Parkinson's disease and their care partners want guidance from healthcare services in order to develop skills to adjust to life with a long-term condition. The Swedish National Parkinson School is a dyadic self-management programme to support both persons with Parkinson's disease and care partners.
objectiveTo assess the outcomes of the Swedish National Parkinson School as reported by participants.
designA quasi-experimental case-control study in clinical care using self-reported questionnaires.
methodData were collected during 2015-2017, before and after participation in the National Parkinson School or before and after seven weeks of standard care. Outcomes were assessed using generic and Parkinson's specific questionnaires. Descriptive statistics were used to describe baseline characteristics. Mann-Whitney
resultsImprovements regarding health status, constructive attitudes and approaches, and skill and technique acquisition were found after the intervention among persons with Parkinson's disease. No changes were found among care partners.
conclusionThe findings indicate that the Swedish National Parkinson School may improve health status and self-management among persons with Parkinson's disease, but further studies are needed to better understand the effects of the programme.
Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.