Observational studyJournal of cancer survivorship : research and practice2020
Unmet expectations in prostate cancer patients and their association with decision regret.
Observational study in Journal of cancer survivorship : research and practice, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
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Who cites it
23 citing papers in PubMed.
- Trial
- Function drives 1-year decision regret in radical prostatectomy: a multicentre prospective study.BJU international · 2026Article
- Outcomes That Matter in Gastrointestinal Cancer Care: A Focus Group Study of Patient-Centred Outcomes Identified by Patients and Care Partners.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Scoping Review of Patient-Centered Outcomes in Gastrointestinal Cancer Care.Psycho-oncology · 2026Article
- Decision regret in patients with rectal cancer undergoing multimodal therapy.Clinical and translational radiation oncology · 2026Article
- Regret concerning treatment decisions in patients with primary or secondary brain tumors - a cross-sectional exploratory bicentric analysis.Journal of neuro-oncology · 2026Article
- Article
- Evaluating the cost-effectiveness of the Prostate Cancer Patient Empowerment Program A comprehensive health economic analysis from a randomized controlled trial.Canadian Urological Association journal = Journal de l'Association des urologues du Canada · 2025Article
- Quality of life and surgical treatment regret in patients with benign prostatic hypertrophy: a multicenter study.The Canadian journal of urology · 2025Article
- Treatment decision-making and treatment experiences in men with metastatic castration-resistant prostate cancer.Acta oncologica (Stockholm, Sweden) · 2025Article
- Decision regret of cancer patients after radiotherapy: results from a cross-sectional observational study at a large tertiary cancer center in Germany.Journal of cancer research and clinical oncology · 2024Observational
- Patient engagement in designing and publishing research in prostate cancer: a scoping review.Future oncology (London, England) · 2024Article
- Local Treatment and Treatment-Related Adverse Effects Among Patients With Advanced Prostate Cancer.JAMA network open · 2023Article
- "Ultimately, You Realize You're on Your Own": The Impact of Prostate Cancer on Gay and Bisexual Men Couples.International journal of environmental research and public health · 2023Article
- Article
- Shared decision-making and the lessons learned about decision regret in cancer patients.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Article
- Unmet supportive care needs in prostate cancer survivors with advanced disease: A mixed-methods exploration.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2022Article
- Type of treatment, symptoms and patient satisfaction play an important role in primary care contact during prostate cancer follow-up: results from the population-based PROFILES registry.BMC family practice · 2021Article
- Hope versus reality: Parent expectations of genomic testing.Patient education and counseling · 2021Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeInformation about prostate cancer patients' experiences with their treatment is crucial to optimize shared decision-making. This study examined unmet expectations in prostate cancer patients and their association with decision regret.
methodsWe conducted a prospective, observational, multi-center study of men diagnosed with localized prostate cancer between 2014 and 2016. Questionnaires were completed at baseline (pre-treatment), and up to 12 months after treatment. Unmet expectations were reported as the proportion of patients who experienced side effects as worse than expected. Linear regression analysis was used to identify factors associated significantly (p ≤ 0.05) with unmet expectations and its association with decision regret.
resultsAt 1-year follow-up, the majority of the patients (71%, 210/296) reported at least one unmet expectation. The proportion of patients who reported worse than expected erectile problems was 56%, recovery period = 29%, urinary problems = 28%, fatigue = 24%, and bowel problems = 17%. Unmet expectations were comparable between treatment groups, except for fatigue. A passive role in the decision-making process (eta squared (η
conclusionsUnmet expectations are common among men treated for localized prostate cancer. Involving patients in the treatment decision-making process and offering additional counseling to patients who indicate uncertainty about their decision, may help to avoid unmet expectations. IMPLICATIONS FOR CANCER SURVIVORS: The current study emphasizes the need for involving prostate cancer patients in the decision-making process in order to mitigate unmet expectations.
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