ArticleJournal of perinatology : official journal of the California Perinatal Association2020
Communication between neonatologists and parents when prognosis is uncertain.
Article in Journal of perinatology : official journal of the California Perinatal Association, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
8 citing papers in PubMed.
- Parents' perspectives on the use of statistics to convey uncertainty in the NICU: a qualitative analysis.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- The effect of disease uncertainty on stress perception among parents of critically ill children in the PICU:the mediating effect of coping styles.BMC psychology · 2025Article
- Uncertainties in the NICU: a scoping review to inform a tailored taxonomy.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Uncertainty and probability in neonatal end-of-life decision-making: analysing real-time conversations between healthcare professionals and families of critically ill newborns.BMC palliative care · 2023Article
- Characteristics of Critically Ill Infants at the End of Life in the Neonatal Intensive Care Unit.Journal of palliative medicine · 2023Article
- Defining Neonatal Serious Illness.Journal of palliative medicine · 2022Article
- Words matter: exploring communication between parents and neonatologists.Journal of perinatology : official journal of the California Perinatal Association · 2022Article
- Pay attention to doctor-patient dialogues: Multi-modal knowledge graph attention image-text embedding for COVID-19 diagnosis.An international journal on information fusion · 2021Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveWhen an infant's prognosis is uncertain, communication between neonatologists and parents surrounding goals of care and decision-making can be challenging. This qualitative study explored communication between neonatologists and parents to discover qualities which may enhance or impede parent-clinician partnership under such difficult circumstances. STUDY
designGuided by the National Cancer Institute (NCI) Patient Centered Communication framework, semi-structured individual interviews were conducted and analyzed regarding neonatologist and parent perceptions of their communication. Subjects consisted of nine dyads of neonatologists and English-speaking parents whose infant had an uncertain prognosis.
resultsParents were overall satisfied with neonatologists' communications concerning their infant's uncertain trajectory. Nonetheless, both experienced challenges and distress during communication, impeding collaboration and engagement.
conclusionsFamilies and neonatologists value principles of patient centered communication but report challenges implementing this practice. Incorporating a multidisciplinary approach in settings of prognostic uncertainty to foster patient centered communication, may enhance communication surrounding NICU care.
Indexed as
Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.