Evidence map›Paper›PMID 32377557›Full record

ArticleAlzheimer's & dementia (New York, N. Y.)2020

Using care navigation to address caregiver burden in dementia: A qualitative case study analysis.

Alissa Bernstein, Jennifer Merrilees, Sarah Dulaney, Krista L Harrison, Winston Chiong, Paulina Ong, Julia Heunis, Jeff Choi, Reilly Walker, Julie E Feuer and 5 more

Open access · goldAbstract read
In one paragraph

Article in Alzheimer's & dementia (New York, N. Y.), 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed
3.5field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

20 citing papers in PubMed, 38 citations in OpenAlex.

  1. Trial
  2. Long-term effects of collaborative dementia care on quality of life and caregiver well-being.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025
    Trial
  3. Promoting Adaptation to Caregiving Challenges: A Qualitative Study of Dementia Caregiving Specialists.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026
    Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Review
  17. Article
  18. Article
  19. Article
  20. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors at 5 institutions in 2 countries.

Alissa BernsteinPhilip R. Lee Institute for Health Policy Studies University of California San Francisco California.
Jennifer MerrileesDepartment of Neurology Memory and Aging Center University of California San Francisco California.
Sarah DulaneyDepartment of Neurology Memory and Aging Center University of California San Francisco California.
Krista L HarrisonPhilip R. Lee Institute for Health Policy Studies University of California San Francisco California.
Winston ChiongDepartment of Neurology Memory and Aging Center University of California San Francisco California.
Paulina OngDepartment of Neurology Memory and Aging Center University of California San Francisco California.
Julia HeunisDepartment of Neurology Memory and Aging Center University of California San Francisco California.
Jeff ChoiDepartment of Neurology Memory and Aging Center University of California San Francisco California.
Reilly WalkerDepartment of Neurology Memory and Aging Center University of California San Francisco California.
Julie E FeuerDepartment of Neurology Memory and Aging Center University of California San Francisco California.
Kirby LeeDepartment of Clinical Pharmacy University of California San Francisco California.
Daniel DohanPhilip R. Lee Institute for Health Policy Studies University of California San Francisco California.
Stephen J BonaseraDivision of Geriatrics Department of Internal Medicine Home Instead Center for Successful Aging Omaha Nebraska.
Bruce L MillerDepartment of Neurology Global Brain Health Institute University of California San Francisco California.
Katherine L PossinDepartment of Neurology Global Brain Health Institute University of California San Francisco California.
University of California, San Francisco · USUniversity Memory and Aging Center · USPhilips (Finland) · FIGlobal Brain Health Institute · USQuality Living · US

Funding

VARC CoreP30AG044281 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Alexander Keliimoeanu Smith · 2013 to 2026
$19.9M
The Care Ecosystem: Navigating patients and caregivers through stages of dementia careR01AG056715 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI POSSIN, KATHERINE LAUREL · 2017 to 2021
$6.0M
Palliative Care for People Living at Home with Advancing Dementia and Their CaregiversK01AG059831 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI HARRISON, KRISTA LYN · 2019 to 2023
$720k
NIA NIH HHS K01 AG059831NIA NIH HHS L30 AG060590NIA NIH HHS P30 AG044281NIA NIH HHS R01 AG056715
6 · The paper itself

Abstract

introductionMany caregivers of people with dementia experience burden and resulting health effects due to the intensive nature of caregiving. Phone- and web-based care navigation is an innovative model of care that may be useful in addressing caregiver burden in dementia.

methodsQualitative methods (interviews, focus groups, and case study analysis) were used to identify care navigator approaches used to address caregiver burden in dementia as part of a dementia care navigation program.

resultsCare navigators targeted caregiver burden by focusing on strategies to reduce caregiver guilt and frustration, manage patient-related behavior, address caregiver depression, and improve the relationship between the caregiver and person with dementia. The case studies presented demonstrate the ways that care navigators identified patient and caregiver needs and tailored their approaches to meet the specific social, cultural, economic, and geographic contexts of the dyads with which they worked. DISCUSSION: Findings provide insights into strategies used to address caregiver burden through care navigation. Care navigators who speak the same language as the caregivers with whom they work and who have an in-depth understanding of the symptoms of different dementia syndromes may be particularly effective.

Indexed as

caregiver burdencare navigationcase study analysisdementiapersonalized carequalitative research

Identifiers

PMID32377557
PMCPMC7201177
OpenAlexW3023299962

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.