ArticlePalliative medicine2020
Building trust and facilitating goals of care conversations: A qualitative study in people with heart failure receiving home hospice care.
Article in Palliative medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it, 19 citations in OpenAlex.
- The perceptions and experiences of community nurses and patients towards shared decision-making in the home setting: An integrative review.Journal of advanced nursing · 2025Pooled it
- Guided Goals of Care Conversations Reveal Evolving, Personalized Priorities.Journal of pain and symptom management · 2026Article
- Surrogate Trust in the Intensive Care Unit: What Can We Do Better?Healthcare (Basel, Switzerland) · 2025Article
- The Paradox of Choice in Palliative Care Decision-Making in Managed Long-Term Care: A Qualitative Study.Home health care management & practice · 2025Article
- Components of home-based palliative and supportive care for adults with heart failure: A scoping review.Palliative medicine · 2025Article
- Understanding COVID-19 vaccination behaviors and intentions in Ghana: A Behavioral Insights (BI) study.PloS one · 2024Article
- Caregiving experiences of older family caregivers of persons with heart failure: A mixed methods study.Geriatric nursing (New York, N.Y.)Article
Corrections and comments
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Authors and funding
6 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundDespite a majority of persons receiving hospice care in their homes, there are gaps in understanding how to facilitate goals of care conversations between persons with heart failure and healthcare providers.
aimTo identify barriers and facilitators which shape goals of care conversations for persons with heart failure in the context of home hospice.
designA qualitative descriptive study design was used with semi-structured interviews. SETTING/
participantsWe conducted qualitative interviews with persons with heart failure, family caregivers, and interprofessional healthcare team members at a large not-for-profit hospice agency in New York City between March 2018 and February 2019.
resultsA total of 39 qualitative interviews were conducted, including with healthcare team members (e.g. nurses, physicians, social workers, spiritual counselors), persons with heart failure, and family caregivers. Three themes emerged from the qualitative interviews regarding facilitators and barriers in goals of care conversations for better decision-making: (1) trust is key to building and maintaining goals of care conversations; (2) lack of understanding and acceptance of hospice inhibits goals of care conversations; and (3) family support and engagement promote goals of care conversations.
conclusionFindings from this study suggest that interventions designed to improve goals of care conversations in the home hospice setting should focus on promoting understanding and acceptance of hospice, family support and engagement, and building trusting relationships with interprofessional healthcare teams.
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Registered trials
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