Evidence map›Paper›PMID 32370853›Full record

ArticleMayo Clinic proceedings2020

Participation Bias in a Survey of Community Patients With Heart Failure.

Irmak Simsek, Sheila M Manemann, Kathleen J Yost, Alanna M Chamberlain, Matteo Fabbri, Ruoxiang Jiang, Susan A Weston, Veronique L Roger

Abstract read
In one paragraph

Article in Mayo Clinic proceedings, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Trial
  2. Dietary and Lifestyle Patterns among Young Patients with Lung Cancer: Analysis of Mutation-Specific Phenotypes.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2026
    Article
  3. Article
  4. Patient Awareness of Heart Failure Diagnosis: A Community Study.Journal of the American Heart Association · 2023
    Article
  5. Article
  6. Patient-centered communication and outcomes in heart failure.The American journal of managed care · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Irmak SimsekDepartment of Health Sciences Research, Mayo Clinic, Rochester, MN.
Sheila M ManemannDepartment of Health Sciences Research, Mayo Clinic, Rochester, MN.
Kathleen J YostDepartment of Health Sciences Research, Mayo Clinic, Rochester, MN.
Alanna M ChamberlainDepartment of Health Sciences Research, Mayo Clinic, Rochester, MN.
Matteo FabbriDepartment of Health Sciences Research, Mayo Clinic, Rochester, MN.
Ruoxiang JiangDepartment of Health Sciences Research, Mayo Clinic, Rochester, MN.
Susan A WestonDepartment of Health Sciences Research, Mayo Clinic, Rochester, MN.
Veronique L RogerDepartment of Health Sciences Research, Mayo Clinic, Rochester, MN; Division of Cardiovascular Diseases, Mayo Clinic, Rochester, MN. Electronic address: roger.veronique@mayo.edu.

Funding

Rochester Epidemiology ProjectR01AG034676 · NIA · MAYO CLINIC ROCHESTER · PI ROCCA, WALTER A, ST SAUVER, JENNIFER LYNN · 2010 to 2019
$9.5M
'Heart Failure in the Community: Multimorbidity and Outcomes'R01HL120859 · NHLBI · MAYO CLINIC ROCHESTER · PI ROGER, VERONIQUE LEE · 2014 to 2017
$3.2M
Interdisciplinary Infrastructure for Aging Research: Rochester Epidemiology ProjectR33AG058738 · NIA · MAYO CLINIC ROCHESTER · PI LEBRASSEUR, NATHAN K, OLSON, JANET E · 2020 to 2022
$2.4M
NHLBI NIH HHS R01 HL120859NIA NIH HHS R01 AG034676NIA NIH HHS R33 AG058738
6 · The paper itself

Abstract

objectiveTo identify differences between participants and nonparticipants in a survey of physical and psychosocial aspects of health among a population-based sample of patients with heart failure (HF). PATIENTS AND

methodsResidents from 11 Minnesota counties with a first-ever code for HF (International Classification of Diseases, Ninth Revision 428 and Tenth Revision I50) between January 1, 2013, and December 31, 2016, were identified. Participants completed a questionnaire by mail or telephone. Characteristics and outcomes were extracted from medical records and compared between participants and nonparticipants. Response rate was calculated using guidelines of the American Association for Public Opinion Research. The association between nonparticipation and outcomes was examined using Cox proportional hazards regression for death and Andersen-Gill modeling for hospitalizations.

resultsAmong 7911 patients, 3438 responded to the survey (American Association for Public Opinion Research response rate calculated using formula 2 = 43%). Clinical and demographic differences between participants and nonparticipants were noted, particularly for education, marital status, and neuropsychiatric conditions. After a mean ± SD of 1.5±1.0 years after survey administration, 1575 deaths and 5857 hospitalizations occurred. Nonparticipation was associated with a 2-fold increased risk for death (hazard ratio, 2.29; 95% CI, 2.05-2.56) and 11% increased risk for hospitalization (hazard ratio, 1.11; 95% CI, 1.02-1.22) after adjusting for age, sex, time from HF diagnosis to index date, marital status, coronary disease, arrhythmia, hyperlipidemia, diabetes, cancer, chronic kidney disease, arthritis, osteoporosis, depression, and anxiety.

conclusionIn a large survey of patients with HF, participation was associated with notable differences in clinical and demographic characteristics and outcomes. Examining the impact of participation is critical to draw inference from studies of patient-reported measures.

Indexed as

Heart FailureAgedAged, 80 and overBiasFemaleHealth SurveysHumansMaleMiddle AgedMinnesotaPatient ParticipationProspective Studies

Identifiers

PMID32370853
PMCPMC7213075

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.