ArticleBMC nephrology2020
Quality of life among caregivers of people with end-stage kidney disease managed with dialysis or comprehensive conservative care.
Article in BMC nephrology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
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Who cites it
24 citing papers in PubMed, 42 citations in OpenAlex.
- Deciding between conservative kidney management and dialysis in older people with kidney failure: a narrative review.Clinical kidney journal · 2026Review
- e-Mental Health Intervention Preferences Among Informal Caregivers of Adults Living with Chronic Kidney Disease: Semistructured Interview Study.JMIR human factors · 2026Article
- Self-Efficacy and Caregiving Competence in Family Caregivers of Patients Undergoing Renal Replacement Therapy: A Correlational Study.Nursing reports (Pavia, Italy) · 2026Article
- PaCE CKD: A Multinational Survey of Health-Related Quality of Life in Patients with Chronic Kidney Disease and Caregivers.Advances in therapy · 2026Article
- Article
- A qualitative exploration of cAregiver experienCes Of conseRvatively maNaged kidney failure: the ACORN study.BMC nephrology · 2025Article
- Questions older people and caregivers ask about kidney therapies: A computer-assisted analysis.Patient education and counseling · 2025Article
- Article
- Measuring person-centered integrated care for people living with mild to moderate chronic kidney disease and multimorbidity: a cross-sectional survey.Frontiers in health services · 2025Article
- Predictors of quality of life among caregivers of patients with moderate to severe kidney disease: an Australian cross-sectional study.Health and quality of life outcomes · 2024Article
- Catastrophic healthcare expenditure and caregiver burden in pediatric chronic kidney disease - a mixed methods study from a low resource setting.Pediatric nephrology (Berlin, Germany) · 2024Article
- Facilitators and Barriers to Receiving Palliative Care in People with Kidney Disease: Predictive Factors from an International Nursing Perspective.Nursing reports (Pavia, Italy) · 2024Article
- "Systems seem to get in the way": a qualitative study exploring experiences of accessing and receiving support among informal caregivers of people living with chronic kidney disease.BMC nephrology · 2024Article
- Article
- Conservative Kidney Management in the United States: What It Is and What It Could Be.Kidney medicine · 2023Article
- Relationship between fatigue and quality of life and related factors in family caregivers of patients on hemodialysis.BMC psychiatry · 2023Article
- Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease: an online cross-sectional survey.BMC nephrology · 2023Article
- Palliative care needs and symptom burden in younger and older patients with end-stage renal disease undergoing maintenance hemodialysis: A cross-sectional study.International journal of nursing sciences · 2022Article
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Corrections and comments
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Authors and funding
6 authors at 4 institutions in 2 countries.
Funding
Abstract
backgroundTo measure health-related and care-related quality of life among informal caregivers of older people with end-stage kidney disease (ESKD), and to determine the association between caregiver quality of life and care recipient's treatment type.
methodsA prospective cross-sectional study was conducted. Three renal units in the UK and Australia were included. Informal caregivers of people aged ≥75 years with ESKD managed with dialysis or comprehensive conservative non-dialytic care (estimated glomerular filtration (eGFR) ≤10 mL/min/1.73m
resultsOf 63 caregivers, 49 (78%) were from Australia, 26 (41%) cared for an older person managed with dialysis, and 37 (59%) cared for an older person managed with comprehensive conservative care. Overall, 73% were females, and the median age of the entire cohort was 76 years [IQR 68-81]. When adjusted for caregiver sociodemographic characteristics, caregivers reported significantly worse carer experience (CES score 15.73, 95% CI 5.78 to 25.68) for those managing an older person on dialysis compared with conservative care. However, no significant difference observed for carer HRQoL (SF-6D utility index - 0.08, 95% CI - 0.18 to 0.01) for those managing an older person on dialysis compared with conservative care.
conclusionsOur data suggest informal caregivers of older people on dialysis have significantly worse care-related quality of life (and therefore greater need for support) than those managed with comprehensive conservative care. It is important to consider the impact on caregivers' quality of life when considering treatment choices for their care recipients.
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Registered trials
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