ArticleComputer supported cooperative work : CSCW : an international journal2016
Turning to Peers: Integrating Understanding of the Self, the Condition, and Others' Experiences in Making Sense of Complex Chronic Conditions.
Article in Computer supported cooperative work : CSCW : an international journal, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The renewed Development Model for Integrated Care: a systematic review and model update.BMC health services research · 2025Pooled it
- Navigating Diabetes Management in the Digital Era: Scoping Review of Online Health Information-Seeking Behavior.Journal of medical Internet research · 2026Article
- A 6-Month Evaluation of the Peer-Ceived Momentary Assessment Method in a Small Sample of Liver Transplant Patients and Their Support Persons: Longitudinal Observational Study.JMIR formative research · 2025Observational
- Endometriosis Communities on Reddit: Quantitative Analysis.Journal of medical Internet research · 2025Article
- Navigating normalcy: designing personal health visualizations for pediatric kidney transplant recipients and caregivers.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- MigraineTracker: Examining Patient Experiences with Goal-Directed Self-Tracking for a Chronic Health Condition.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2024Article
- Women's use of online health and social media resources to make sense of their polycystic ovary syndrome (PCOS) diagnosis: a qualitative study.BMC women's health · 2024Article
- "You Can See the Connections": Facilitating Visualization of Care Priorities in People Living with Multiple Chronic Health Conditions.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2023Article
- Clinical Application of a Peer Coaching Intervention to Enhance Self-Management for Adolescents and Young Adults With Inflammatory Bowel Disease.Clinical practice in pediatric psychology · 2022Article
- "Not Sure Sharing Does Anything Extra for Me": Understanding How People with Cardiovascular Disease Conceptualize Sharing Personal Health Data with Peers.International journal of environmental research and public health · 2022Article
- From Reflection to Action: Combining Machine Learning with Expert Knowledge for Nutrition Goal Recommendations.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2021Article
- Article
- Continuous Glucose Monitoring in the Real World Using Photosurveillance of #Dexcom on Instagram: Exploratory Mixed Methods Study.JMIR public health and surveillance · 2019Article
- State of the Science: A Scoping Review and Gap Analysis of Diabetes Online Communities.Journal of diabetes science and technology · 2019Article
- Using Social Media to Broaden Understanding of the Barriers and Facilitators to Exercise in Adults With Type 1 Diabetes.Journal of diabetes science and technology · 2019Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
People are increasingly involved in the self-management of their own health, including chronic conditions. With technology advances, the choice of self-management practices, tools, and technologies has never been greater. The studies reported here investigated the information seeking practices of two different chronic health populations in their quest to manage their health conditions. Migraine and diabetes patients and clinicians in the UK and the US were interviewed about their information needs and practices, and representative online communities were explored to inform a qualitative study. We found that people with either chronic condition require personally relevant information and use a broad and varied set of practices and tools to make sense of their specific symptoms, triggers, and treatments. Participants sought out different types of information from varied sources about themselves, their medical condition, and their peers' experiences of the same chronic condition. People with diabetes and migraine expended great effort to validate their personal experiences of their condition and determine whether these experiences were 'normal'. Based on these findings, we discuss the need for future personal health technologies that support people in engaging in meaningful and personalised data collection, information seeking, and information sharing with peers in flexible ways that enable them to better understand their own condition.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.