ArticleBMJ open2020
Patients' perspectives on how to improve diabetes care and self-management: qualitative study.
Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
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Who cites it
18 citing papers in PubMed.
- Language matters: Guidance for person-centred diabetes communication in Ireland.Diabetic medicine : a journal of the British Diabetic Association · 2026Review
- Service user experiences of a nationally implemented diabetes prevention programme in England: a qualitative interview study.Health psychology and behavioral medicine · 2026Article
- Dear Health Care Professional: What People Need and Want When Diagnosed With Type 2 Diabetes.Clinical diabetes : a publication of the American Diabetes Association · 2025Article
- Implementation of Therapeutic Patient Education (TPE) in Primary Care, as Perceived by Professionals: A Narrative Review.Patient preference and adherence · 2025Review
- Article
- Patient Perspectives on Evolving Diverticulitis Treatment: An Assessment of Patient Willingness to Enroll in a Randomized Controlled Trial.Annals of surgery open : perspectives of surgical history, education, and clinical approaches · 2024Article
- Patients as teachers: a within-subjects randomized pilot experiment of patient-led online learning modules for health professionals.BMC medical education · 2024Article
- Optimizing Glycemic Outcomes for Minoritized and Medically Underserved Adults Living with Type 1 Diabetes.Endocrinology and metabolism clinics of North America · 2024Review
- The Lived Experience of Patients with Chronic Kidney Disease: Insights From DISCOVER CKD.American journal of nephrology · 2024Observational
- Psycho-Behavioral Characteristics Perceived as Facilitators by Brazilian Adults with Type 1 Diabetes Mellitus in a Public Health Service.Healthcare (Basel, Switzerland) · 2023Article
- Article
- US Adults Practicing Healthy Lifestyles Before and During COVID-19: Comparative Analysis of National Surveys.JMIR public health and surveillance · 2023Article
- Identifying patient preferences for diabetes care: A protocol for implementing a discrete choice experiment in Samoa.PloS one · 2023Article
- "How we do it": A qualitative study of strategies for adopting an exercise routine while living with type 1 diabetes.Frontiers in endocrinology · 2022Article
- Determinants of adherence to insulin and blood glucose monitoring among adolescents and young adults with type 1 diabetes in Qatar: a qualitative study.F1000Research · 2022Article
- Experiences of First Nations adolescents living with type 2 diabetes: a focus group study.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2021Article
- Knowledge and Practice on Diabetic Foot Self-Care and Associated Factors Among Diabetic Patients at Dessie Referral Hospital, Northeast Ethiopia: Mixed Method.Diabetes, metabolic syndrome and obesity : targets and therapy · 2021Article
- Article
Corrections and comments
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Authors and funding
11 authors.
Funding
Abstract
objectivePeople living with diabetes need and deserve high-quality, individualised care. However, providing such care remains a challenge in many countries, including Canada. Patients' expertise, if acknowledged and adequately translated, could help foster patient-centred care. This study aimed to describe Expert Patients' knowledge, wisdom and advice to others with diabetes and to health professionals to improve diabetes self-management and care. DESIGN AND
methodsWe recruited a convenience sample of 21 men and women. Participants were people of diverse backgrounds who are Patient Partners in a national research network (hereafter Expert Patients). We interviewed and video-recorded their knowledge, wisdom and advice for health professionals and for others with diabetes. Three researchers independently analysed videos using inductive framework analysis, identifying themes through discussion and consensus. Expert Patients were involved in all aspects of study design, conduct, analysis and knowledge translation.
resultsAcknowledging and accepting the reality of diabetes, receiving support from family and care teams and not letting diabetes control one's life are essential to live well with diabetes. To improve diabetes care, health professionals should understand and acknowledge the impact of diabetes on patients and their families, and communicate with patients openly, respectfully, with empathy and cultural competency.
conclusionExpert Patients pointed to a number of areas of improvement in diabetes care that may be actionable individually by patients or health professionals, and also collectively through intergroup collaboration. Improving the quality of care in diabetes is crucial for improving health outcomes for people with diabetes.
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