Evidence map›Paper›PMID 32342776›Full record

ArticleThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics2020

General-Purpose Privacy Regulation and Translational Genomics.

William McGeveran, Caroline Schmitz

Abstract read
In one paragraph

Article in The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Review
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

William McGeveranWilliam McGeveran, J.D., is Associate Dean for Academic Affairs and Julius E. Davis Professor of Law at the University of Minnesota. He is the author of a casebook and many articles on data privacy law, and serves as reporter for a Uniform Law Commission project to draft a model state privacy law. Caroline Schmitz, J.D., graduated cum laude from the University of Minnesota Law School in May 2019. While in law school, she participated in the Data Compliance Practicum and the Consumer Protection Clinic. She now works for the Federal Trade Commission (FTC) in its Division of Privacy & Identity Protection. Caroline participated in co-authoring this article in her personal capacity, not as a representative of the FTC, and the views expressed are her own and not necessarily those of the Commission or any individual Commissioner.
Caroline SchmitzWilliam McGeveran, J.D., is Associate Dean for Academic Affairs and Julius E. Davis Professor of Law at the University of Minnesota. He is the author of a casebook and many articles on data privacy law, and serves as reporter for a Uniform Law Commission project to draft a model state privacy law. Caroline Schmitz, J.D., graduated cum laude from the University of Minnesota Law School in May 2019. While in law school, she participated in the Data Compliance Practicum and the Consumer Protection Clinic. She now works for the Federal Trade Commission (FTC) in its Division of Privacy & Identity Protection. Caroline participated in co-authoring this article in her personal capacity, not as a representative of the FTC, and the views expressed are her own and not necessarily those of the Commission or any individual Commissioner.

Funding

LawSeq: Building a Sound Legal Foundation for Translating Genomics into Clinical ApplicationR01HG008605 · NHGRI · UNIVERSITY OF MINNESOTA · PI CLAYTON, ELLEN WRIGHT, LAWRENZ, FRANCES PATRICIA · 2016 to 2018
$2.2M
NHGRI NIH HHS R01 HG008605
6 · The paper itself

Abstract

At one time, specialized health privacy laws represented the bulk of the rules regulating genetic privacy, Today, however, as both the field of genomics and the content of privacy law change rapidly, a new generation of general-purpose privacy laws may impose new restrictions on collection, storage, and disclosure of genetic data. This article surveys these laws and considers implications.

Indexed as

GenomicsGovernment RegulationConfidentialityGenetic PrivacyHumansPrivacy

Identifiers

PMID32342776
PMCPMC8607995

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.