ArticleSAGE open medicine2020
Living with a chronic disease: A quantitative study of the views of patients with a chronic disease on the change in their life situation.
Article in SAGE open medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Anxiety, depression and acromegaly: a systematic review.Journal of endocrinological investigation · 2025Pooled it
- Becoming whole again-Caring for the self in chronic illness-A narrative review of qualitative empirical studies.Journal of clinical nursing · 2025Pooled it
- Understanding the impact of endometriosis on women's life: an integrative review of systematic reviews.BMC women's health · 2024Pooled it
- COPD-Related Anxiety: A Systematic Review of Patient Perspectives.International journal of chronic obstructive pulmonary disease · 2023Pooled it
- Article
- Examining the role of social workers within clinical metabolic genetics care.Molecular genetics and metabolism reports · 2026Review
- Sex-specific patterns of avoidant and restrictive eating in inflammatory bowel disease: validation of the German version of the Nine Item Avoidant/Restrictive Food Intake disorder screen (NIAS).Journal of eating disorders · 2026Article
- Analysis of the Behavioral Performance and Social Support of Patients in Online Health Communities From User Profile Perspectives: Comparative Study.Journal of medical Internet research · 2025Article
- Time Capsule Medicine: A Mixed-Methods Pilot Study on Immersive Simulation for Chronic Disease Education in Medical Students.Clinics and practice · 2025Article
- Phenomenological Study on the Lived Experience of Women with Polycystic Ovary Syndrome in ChileRevista colombiana de obstetricia y ginecologia · 2025Article
- Uncovering essential skills for effective rheumatoid arthritis management: A qualitative grounded theory study.Journal of education and health promotion · 2025Article
- Acceptance of illness and quality of life of patients under long-term home nursing care.Frontiers in public health · 2025Article
- Patient Perceptions on the Role of Informal Caregiver Support in Managing Advanced COPD.Journal of patient experience · 2025Article
- Article
- Appropriateness of the EQ-5D-5L in capturing health-related quality of life in individuals with transfusion-dependent β-thalassemia: a mixed methods study.Health and quality of life outcomes · 2024Article
- Translation and psychometric testing of the Persian Version of nurses' ethical decision-making in End-of-Life Care Scale.BMC nursing · 2024Article
- Living with Multimorbidity through Time: A Meta-Synthesis of Qualitative Longitudinal Evidence.Healthcare (Basel, Switzerland) · 2024Review
- A Systematic Literature Review of Psychological Interventions for Adults with Type 1 Diabetes.Diabetes therapy : research, treatment and education of diabetes and related disorders · 2024Review
- Cognitive and Emotional Perceptions of Illness in Patients Diagnosed with Type 2 Diabetes Mellitus.Healthcare (Basel, Switzerland) · 2024Article
- Patient perceptions and preferences of minimally invasive treatment modalities in varicose veins: a cross-sectional survey.Frontiers in cardiovascular medicine · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesChronic diseases have an impact on and change patient's lives which means that they need to find ways to cope with the new situation. The aim was to describe how the chronic disease has influenced patients' views of their life situation.
methodsThe study was quantitative in design with data collected using a semi-structured questionnaire. Descriptive statistics were used to compare similarities and differences between patients with asthma-allergy, diabetes mellitus, cancer and inflammatory rheumatoid arthritis.
resultsChanges in their life were experienced as a negative outcome for the majority of participants. Support can be in the form of interpersonal support from various persons, but also from activities and beliefs/religion. Family and friends as well as healthcare professionals were identified as being most supportive. Sadness and worry were the most common emotions among the participants and their surrounding networks.
conclusionPeople with a chronic disease have to live with the consequences the disease has for their life situation. They need to find strategies to cope with the negative outcome in their new life. Support from their own network and healthcare professionals can be helpful in the new life situation.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.