ArticleJournal of pediatric psychology2020
Pathways by which Maternal Factors are Associated With Youth Spina Bifida-Related Responsibility.
Article in Journal of pediatric psychology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed, 11 citations in OpenAlex.
- The concerns of mothers of female youth with physical disabilities in transitioning to adulthood: A qualitative study.Journal of pediatric rehabilitation medicine · 2026Article
- The daily phone diary in adolescents and young adults with spina bifida: utility and psychometric evidence.Journal of pediatric psychology · 2025Article
- "I'm a bathroom expert": a qualitative study exploring how students with physical disabilities manage toileting during college.Frontiers in pediatrics · 2024Article
- Bidirectional, longitudinal associations between chronic pain and family functioning in youth with spina bifida.Families, systems & health : the journal of collaborative family healthcare · 2023Article
- Parents' school-related concerns and perceived strengths in youth with spina bifida.Child: care, health and development · 2022Article
- Longitudinal Trajectories of Clean Intermittent Catheterization Responsibility in Youths with Spina Bifida.The Journal of urology · 2022Article
- Medical responsibility growth in youth with spina bifida: Neuropsychological and parenting predictors.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2021Article
- Cross-Lag Model of Medical Responsibility and Skills in Youth With Spina Bifida.Journal of pediatric psychology · 2021Article
- Factor Structure of Medical Autonomy Scales in Young People with Spina Bifida.Journal of pediatric psychology · 2021Article
- Predictors of Distinct Trajectories of Medical Responsibility in Youth with Spina Bifida.Journal of pediatric psychology · 2020Article
- Developing and Piloting an Instrument to Prioritize the Worries of Female Youth with a Physical Disability and Mothers during the Transition to Adulthood.MDM policy & practiceArticle
Corrections and comments
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Authors and funding
7 authors at 1 institution in 1 country.
Funding
Abstract
objectiveAchieving condition-related autonomy is an important developmental milestone for youth with spina bifida (SB). However, the transfer of condition-related responsibility to these youth can be delayed due to parent factors. This study aimed to investigate two potential pathways by which maternal factors may be associated with condition-related responsibility among youth with SB: (a) Maternal adjustment → perception of child vulnerability (PPCV) → youth condition-related responsibility; and (b) Maternal PPCV → overprotection → youth condition-related responsibility.
methodsParticipating youth with SB (N = 140; Mage=11.4 years, range = 8-15 years) were recruited as part of a longitudinal study; data from three time points (each spaced 2 years apart) from the larger study were used. Mothers reported on personal adjustment factors, PPCV, and overprotection. An observational measure of overprotection was also included. Mothers, fathers, and youth with SB reported on youths' degree of responsibility for condition-related tasks. Analyses included age, lesion level, IQ, and the dependent variables at the prior wave as covariates.
resultsBootstrapped mediation analyses revealed that PPCV significantly mediated the relationship between maternal distress and youth responsibility for medical tasks such that higher levels of distress at Time 1 predicted higher levels of PPCV at Time 2 and lower youth medical responsibility at Time 3. Furthermore, self-reported maternal overprotection significantly mediated the relationship between maternal PPCV and youth responsibility for medical tasks.
conclusionsMaternal personal distress, PPCV, and self-reported overprotection are interrelated and affect youth's condition-related responsibility. Interventions for mothers of youth with SB that target these factors may improve both maternal and youth outcomes.
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