Evidence map›Paper›PMID 32333299›Full record

ArticleClinical rheumatology2020

Challenges to optimal rheumatology care: a patient-centered focus group study.

J Dollinger, C Neville, C A Pineau, E Vinet, E Hazel, J L F Lee, S Bernatsky

Abstract read
PubMed Publisher
In one paragraph

Article in Clinical rheumatology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
0.9field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it, 8 citations in OpenAlex.

  1. Pooled it
  2. Review
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 1 institution in 1 country.

J DollingerCentre for Outcome Research and Evaluation, Research Institute of the McGill University Health Centre, 5252 boul. de Maisonneuve Ouest, (3F.51), Montreal, QC, H4A 3S5, Canada.
C NevilleCentre for Outcome Research and Evaluation, Research Institute of the McGill University Health Centre, 5252 boul. de Maisonneuve Ouest, (3F.51), Montreal, QC, H4A 3S5, Canada.
C A PineauDivision of Rheumatology, McGill University Health Centre, Montreal, QC, Canada.
E VinetCentre for Outcome Research and Evaluation, Research Institute of the McGill University Health Centre, 5252 boul. de Maisonneuve Ouest, (3F.51), Montreal, QC, H4A 3S5, Canada.
E HazelDivision of Rheumatology, McGill University Health Centre, Montreal, QC, Canada.
J L F LeeCentre for Outcome Research and Evaluation, Research Institute of the McGill University Health Centre, 5252 boul. de Maisonneuve Ouest, (3F.51), Montreal, QC, H4A 3S5, Canada.
S BernatskyCentre for Outcome Research and Evaluation, Research Institute of the McGill University Health Centre, 5252 boul. de Maisonneuve Ouest, (3F.51), Montreal, QC, H4A 3S5, Canada. Sasha.bernatsky@mcgill.ca.
McGill University Health Centre · CA

Funding

Singer Family Foundation NA
6 · The paper itself

Abstract

objectiveTo assess challenges to optimal rheumatology care from the perspective of patients served by our institution's rheumatology division. DESIGN SETTING AND

participantsFocus group study of adult rheumatic disease patients who attend clinics at a university teaching hospital in Montreal, Canada.

interventionsIndividuals participated in 1-h focus group discussions concerning their experiences and beliefs regarding rheumatology care. Sessions were recorded and transcripts generated. A thematic analysis approach was used by two individual analyzers. MAIN OUTCOME MEASURES AND

resultsEighteen patients participated in three focus groups (group one = 8 patients; group two = 5; group three = 5). Eleven patients had systemic lupus erythematosus, 6 had rheumatoid arthritis, and 1 patient had psoriatic arthritis. The average age (standard deviation) was 51.2 (14.0) years, disease duration 23.5 (14.5) years, and in the majority had at least a high school education. All participants were female and 72.2% were Caucasian. Three main themes emerged: theme 1 identified patients' needs for information and support, at diagnosis and throughout the disease trajectory; theme 2 identified barriers to accessing health care: theme 3 identified patients' beliefs regarding improvements needed to optimize their experiences throughout the disease course.

conclusionsOur focus group study not only clarified the needs of rheumatology patients with chronic inflammatory disease, and identified barriers to optimal rheumatology care, but also was a source of recommendations that might improve patient experiences in seeking health care in a rheumatology setting. Limitations include the fact that our participants were all female, and mostly were middle aged, Caucasian and well educated. Regardless, the findings can help inform efforts to improve rheumatology care. Key Points • Our focus group study clarified the needs of chronic inflammatory rheumatic disease, and identified barriers to optimal rheumatology care. • Despite some potential limitations, our work provides recommendations that could improve patient experiences when seeking health care in a rheumatology setting.

Indexed as

Arthritis, RheumatoidRheumatologyAdultCanadaFemaleFocus GroupsHumansMaleMiddle AgedPatient-Centered CareFocus groupInflammatory arthritisOptimal careRheumatology

Identifiers

PMID32333299
OpenAlexW3018255630

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.