Evidence map›Paper›PMID 32328857›Full record

ArticleJournal of autism and developmental disorders2021

Understanding How Parents Make Meaning of Their Child's Behaviors During Screening for Autism Spectrum Disorders: A Longitudinal Qualitative Investigation.

Thomas I Mackie, Ana J Schaefer, Leah Ramella, Alice S Carter, Abbey Eisenhower, Manuel E Jimenez, Angel Fettig, R Christopher Sheldrick

Open access · hybridAbstract read
In one paragraph

Article in Journal of autism and developmental disorders, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
1.4field-weighted citation impact, top 21% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 16 citations in OpenAlex.

  1. Article
  2. The influence of loss to follow-up in autism screening research: Taking stock and moving forward.Journal of child psychology and psychiatry, and allied disciplines · 2024
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 4 institutions in 1 country.

Thomas I MackieDepartment of Health Behavior, Society and Policy, Rutgers School of Public Health, 683 Hoes Lane West, Piscataway, NJ, USA. tim18@sph.rutgers.edu.
Ana J SchaeferDepartment of Health Behavior, Society and Policy, Rutgers School of Public Health, 683 Hoes Lane West, Piscataway, NJ, USA.
Leah RamellaDepartment of Health Law, Policy and Management, School of Public Health, Boston University, One Silber Way, Boston, MA, 02215, USA.
Alice S CarterDepartment of Psychology, University of Massachusetts Boston, 100 Morrissey Boulevard, Boston, MA, USA.
Abbey EisenhowerDepartment of Psychology, University of Massachusetts Boston, 100 Morrissey Boulevard, Boston, MA, USA.
Manuel E JimenezDepartment of Pediatrics, Rutgers Robert Wood Johnson Medical School, 89 French Street, New Brunswick, NJ, 08901, USA.
Angel FettigCollege of Education - Special Education, University of Washington, 2012 Skagit Lane, Box 353600, Seattle, WA, 98195, USA.
R Christopher SheldrickDepartment of Health Law, Policy and Management, School of Public Health, Boston University, One Silber Way, Boston, MA, 02215, USA.
Rutgers, The State University of New Jersey · USBoston University · USUniversity of Massachusetts Boston · USUniversity of Washington · US

Funding

Building a theoretic framework and measures clearinghouse to assess risks and benefits of ASD screening for young children with autismR01MH104400 · NIMH · UNIVERSITY OF MASSACHUSETTS BOSTON · PI CARTER, ALICE S., SHELDRICK, RADLEY C. · 2014 to 2018
$4.3M
HRSA HHS R40MC26195NIMH NIH HHS R01 MH104400NIMH NIH HHS R01MH104400
6 · The paper itself

Abstract

A family's journey in understanding their child's behaviors in relation to Autism Spectrum Disorders (ASD) frequently begins with screening. This study aimed to characterize the interpretive processes that unfold for parents. We employed longitudinal interviews with 19 families engaged in a community-based multi-stage screening protocol. Parents participated in 1-6 interviews dependent upon children's length of engagement in the screening protocol; data were analyzed through modified grounded theory. Parents who moved towards understanding their child's behaviors as ASD expressed (1) sensitization to ASD symptoms, (2) differentiation from other developmental conditions, and (3) use of the ASD diagnosis to explain the etiology of concerning behaviors. Identifying interpretive processes involved during ASD screening provides new opportunities for shared decision-making.

Indexed as

Qualitative ResearchAutism Spectrum DisorderChildChild, PreschoolFemaleGrounded TheoryHumansInterview, PsychologicalLongitudinal StudiesMaleMass ScreeningParentsProblem BehaviorProspective StudiesAutism spectrum disordersParental perceptionQualitativeScreening

Identifiers

PMID32328857
PMCPMC7954750
OpenAlexW3017470492

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.