ReviewCurrent opinion in neurology2020
Measuring outcomes that matter most to people with multiple sclerosis: the role of patient-reported outcomes.
Review in Current opinion in neurology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
31 citing papers in PubMed.
- Patient-reported outcomes as predictors of disability evolution in Multiple Sclerosis: An interpretable machine learning approach.Multiple sclerosis (Houndmills, Basingstoke, England) · 2026Article
- Development of a New Patient-Reported Outcome to Measure Fatigue in Patients with Multiple Sclerosis.Nursing reports (Pavia, Italy) · 2026Article
- Quality of life domains revised by people with multiple sclerosis and healthcare professionals for adaptive measure development.PloS one · 2026Article
- Finnish Registry-Based Protocol for Screening and Management of Fatigue and Cognitive Problems in Multiple Sclerosis: Observational Study.JMIR human factors · 2025Observational
- Investigating Balance Perception and Balance Performance in Neurological Disorders for Targeted Rehabilitation Strategies.Physical therapy · 2025Observational
- Patient-Generated Data as Indicators of Impact of Multidisciplinary and Multi-stakeholder Health Care Systems, in the Age of Personalised Medicine.Neurology and therapy · 2025Article
- Artificial intelligence and science of patient input: a perspective from people with multiple sclerosis.Frontiers in immunology · 2025Article
- MyMS: An Interface for Patient-Reported Outcomes for Finnish Individuals With Multiple Sclerosis.International journal of MS care · 2024Article
- Patient-driven research priorities for patient-centered measurement.BMC health services research · 2024Article
- Agreement between video-based clinician-rated tools and patient-reported outcomes on gait assessment in individuals with multiple sclerosis.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2024Article
- A future of AI-driven personalized care for people with multiple sclerosis.Frontiers in immunology · 2024Article
- Prospective observational study to evaluate treatment satisfaction and effectiveness in patients with relapsing multiple sclerosis starting cladribine tablets (CLADREAL) in Italy.Frontiers in neurology · 2024Article
- The Patient-Determined Disease Steps scale is not interchangeable with the Expanded Disease Status Scale in mild to moderate multiple sclerosis.European journal of neurology · 2024Article
- Data monitoring roadmap. The experience of the Italian Multiple Sclerosis and Related Disorders Register.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2023Article
- Monitoring and Predicting Health Status in Neurological Patients: The ALAMEDA Data Collection Protocol.Healthcare (Basel, Switzerland) · 2023Article
- Establishing clinically meaningful within-individual improvement thresholds for eight patient-reported outcome measures in people with relapsing-remitting multiple sclerosis.Journal of patient-reported outcomes · 2023Article
- Association between early treatment of multiple sclerosis and patient-reported outcomes: a nationwide observational cohort study.Journal of neurology, neurosurgery, and psychiatry · 2023Observational
- Focus on neglected features of cognitive rehabilitation in MS: Setting and mode of the treatment.Multiple sclerosis (Houndmills, Basingstoke, England) · 2022Article
- Collective health research assessment: developing a tool to measure the impact of multistakeholder research initiatives.Health research policy and systems · 2022Article
- The MULTI-ACT model: the path forward for participatory and anticipatory governance in health research and care.Health research policy and systems · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purpose of reviewPatient-reported outcome (PRO) represents a unique opportunity to measure the impact of health research, and care on outcomes that matter most to people with multiple sclerosis (PwMS). RECENT
findingsHow to incorporate PROs in MS clinical trials and, practice remains a matter of debate. The variety of measures available for use in MS has some benefits, but the lack of a set of standard measures has significant disadvantages. To help meeting the challenge, different PROs standard sets have been developed (PROMIS) for use across a broad range of chronic health conditions, and SymptoMScreen, specifically for MS. However, many of them were not co-created with PwMS and lacking understanding about what matters to patients. The newly proposed MS care unit model together with emerging initiatives such as iConquerMS and PROMOPROMS, are shaping new meaningful PROs. However, the uptake of PROMs in all settings can be effective only by a commonly held strategic agenda shared by all relevant stakeholders. SUMMARY: The newly born PRO Initiative for MS (PROMS) aims to develop a strategic agenda shared by all relevant stakeholders to help meeting the challenge of developing PRO measures that correspond to the needs of all stakeholders.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.