ArticleJournal of health care chaplaincy
The role of religion and spirituality in caregiver decision-making about tracheostomy for children with medical complexity.
Article in Journal of health care chaplaincy. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it, 20 citations in OpenAlex.
- Shared decision-making experiences in child long-term ventilation: a systematic review.European respiratory review : an official journal of the European Respiratory Society · 2023Pooled it
- Parental Values During Tracheostomy Decision-Making for Their Critically Ill Child: Interviews of Parents Who Just Made the Decision.Children (Basel, Switzerland) · 2025Article
- Caregiver-informed meta-synthesis of caregivers' experiences with tracheostomy decision-making in pediatrics.Frontiers in pediatrics · 2025Review
- Religious-spiritual coping among family members of children requiring continuous and complex care: a mixed-methods study.Revista da Escola de Enfermagem da U S P · 2025Article
- Tracheostomy decision-making for children with medical complexity: What supports and resources do caregivers need?Palliative & supportive care · 2024Article
- Caring for children with new medical technology at home: parental perspectives.BMJ paediatrics open · 2023Article
- Collaborative decision-making: A framework for decision-making about life-sustaining treatments in children with medical complexity.Pediatric pulmonology · 2022Article
- Proof of concept, feasibility, and acceptability of spiritual care assessment and intervention-pediatric with caregivers of children receiving home mechanical ventilation.Journal of health care chaplaincyArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
Abstract
Children with medical complexity (CMC) receive life-sustaining treatments such as tracheostomy. The objective of this paper is to explore the roles of religion and spirituality (R&S) of caregivers of children with medical complexity (CMC) in their decision to pursue tracheostomy for their children. We conducted 41 in-depth interviews of caregivers of CMC who had received tracheostomies in the prior 5 years. Four themes emerged: (1) Caregivers believed R&S to be powerful for their children's healing, and helped them cope with their children's illnesses; (2) Spirituality was an important factor for caregivers in the decision to pursue tracheostomy for their children; (3) Many caregivers did not discuss their spirituality with clinicians for a variety of reasons; (4) Clergy and hospital chaplains played a major supportive role overall; however, they did not play a significant role in the decision-making process. Our study shows the importance of R&S, and the roles of clergy and chaplains in pediatric tracheostomy decision-making.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.