ArticleParkinson's disease2020
Proactive and Integrated Management and Empowerment in Parkinson's Disease: Designing a New Model of Care.
Article in Parkinson's disease, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
29 citing papers in PubMed, 1 synthesis or guideline pooled it, 58 citations in OpenAlex.
- Case management interventions in chronic disease reduce anxiety and depressive symptoms: A systematic review and meta-analysis.PloS one · 2023Pooled it
- Trial
- Co-Design of a New Integrated Care Model With People Affected by Huntington's Disease: A Mixed Methods Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Article
- Operationalizing goal setting as an outcome measure in trials involving patients with frailty, multimorbidity or complexity.Contemporary clinical trials communications · 2025Article
- Behavioral disorders in Parkinson disease: current view.Journal of neural transmission (Vienna, Austria : 1996) · 2025Review
- A Framework for the Human-Centered Design of Service Processes Enabled by Medical Devices: A Case Study of Wearable Devices for Parkinson's Disease.International journal of environmental research and public health · 2024Article
- The PRIME-NL study: evaluating a complex healthcare intervention for people with Parkinson's disease in a dynamic environment.BMC neurology · 2024Article
- Assessing the validity of a Parkinson's care evaluation: the PRIME-NL study.European journal of epidemiology · 2024Article
- Article
- Parkinson's Disease, Impulsive-Compulsive Behaviors, and Health-Related Quality of Life.Journal of movement disorders · 2024Article
- Self-Management Systems for Patients and Clinicians in Parkinson's Disease Care: A Scoping Review.Journal of Parkinson's disease · 2024Article
- MoveONParkinson: developing a personalized motivational solution for Parkinson's disease management.Frontiers in public health · 2024Article
- Patient Empowerment for Those Living with Parkinson's Disease.Journal of Parkinson's disease · 2024Review
- An Exploration of Wearable Device Features Used in UK Hospital Parkinson Disease Care: Scoping Review.Journal of medical Internet research · 2023Article
- Home-based exercise training by using a smartphone app in patients with Parkinson's disease: a feasibility study.Frontiers in neurology · 2023Article
- Article
- Co-Designing an Integrated Care Network with People Living with Parkinson's Disease: A Heterogeneous Social Network of People, Resources and Technologies.Journal of personalized medicine · 2022Article
- Needs of patients with parkinsonism and their caregivers: a protocol for the PRIME-UK cross-sectional study.BMJ open · 2022Article
- Caregiver Burden in Partners of Parkinsonian Patients with Deep Brain Stimulation.Brain sciences · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors at 4 institutions in 2 countries.
Funding
Abstract
Parkinson's disease is the second most common neurodegenerative condition after Alzheimer's disease. The number of patients will rise dramatically due to ageing of the population and possibly also due to environmental issues. It is widely recognised that the current models of care for people with Parkinson's disease or a form of atypical parkinsonism lack continuity, are reactive to problems rather than proactive, and do not adequately support individuals to self-manage. Integrated models of care have been developed for other chronic conditions, with a range of positive effects. A multidisciplinary team of professionals in the United Kingdom and the Netherlands, all with a long history of caring for patients with movement disorders, used knowledge of deficiencies with the current model of care, an understanding of integrated care in chronic disease and the process of logic modelling, to develop a novel approach to the care of patients with Parkinson's disease. We propose a new model, termed PRIME Parkinson (Proactive and Integrated Management and Empowerment in Parkinson's Disease), which is designed to manage problems proactively, deliver integrated, multidisciplinary care, and empower patients and their carers. It has five main components: (1) personalised care management, (2) education and empowerment of patients and carers, (3) empowerment of healthcare professionals, (4) a population health approach, and (5) support of the previous four components by patient- and professional-friendly technology. Having mapped the processes required for the success of this initiative, there is now a requirement to assess its effect on health-related and quality of life outcomes as well as determining its cost-effectiveness. In the next phase of the project, we will implement PRIME Parkinson in selected areas of the United Kingdom and the Netherlands.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.