ArticleBMC palliative care2020
Profiles of family caregivers of patients at the end of life at home: a Q-methodological study into family caregiver' support needs.
Article in BMC palliative care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.
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Who cites it
14 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The perceived and/or received peer support needs of unpaid cancer caregivers residing in rural and remote areas: A systematic review.Palliative & supportive care · 2025Pooled it
- Caring for the Informal Caregivers: Systematic Review of Unmet Needs in Palliative Care.Nursing open · 2025Pooled it
- Standing next to but not being part of: relatives' experiences of support from healthcare professionals when general palliative care is provided at home.BMC palliative care · 2026Article
- Informal Palliative Care at Home: A Focus Group Study Among Professionals Working in Palliative Care in Portugal.Healthcare (Basel, Switzerland) · 2025Article
- Supporting relatives when general palliative care is provided at home- a focus group study based on nurses' experiences.BMC palliative care · 2025Article
- End-of-life care at home: Dignity of family caregivers.Nursing ethics · 2025Article
- Social support sources for people with palliative care needs at home: a scoping review.BMC palliative care · 2025Article
- Motivation in caregiving among mothers of children with intellectual and developmental disabilities in Iran: A qualitative study.BMC pediatrics · 2024Article
- Understanding caregiver burden and quality of life in Kerala's primary palliative care program: a mixed methods study from caregivers and providers' perspectives.International journal for equity in health · 2024Article
- Article
- The significance of the COVID-19 pandemic for family caregivers of non-COVID-19 patients in need of specialized palliative care at home: a qualitative study.International journal of qualitative studies on health and well-being · 2022Article
- Identifying the prevalence of unmet supportive care needs among family caregivers of cancer patients: an Italian investigation on home palliative care setting.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- How nurses support family caregivers in the complex context of end-of-life home care: a qualitative study.BMC palliative care · 2021Article
- Higher levels of unmet support needs in spouses are associated with poorer quality of life - a descriptive cross-sectional study in the context of palliative home care.BMC palliative care · 2021Article
Corrections and comments
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Authors and funding
6 authors.
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Abstract
backgroundFamily caregivers of patients at the end of life often experience care-related burden. To prevent caregiver burden and to enhance the capacity to provide care it is important to have insight in their support needs. The purpose of this study was to identify profiles of family caregivers who provide care to patients at the end of life at home.
methodsA Q-methodological study was conducted in which family caregivers ranked 40 statements on support needs and experiences with caregiving. Thereafter they explained their ranking in an interview. By-person factor analysis was used to analyse the rankings and qualitative data was used to support the choice of profiles. A set of 41 family caregivers with a variety on background characteristics who currently or recently provided care for someone at the end of life at home were included.
resultsFour distinct profiles were identified; profile (1) those who want appreciation and an assigned contact person; profile (2) was bipolar. The positive pole (2+) comprised those who have supportive relationships and the negative pole (2-) those who wish for supportive relationships; profile (3) those who want information and practical support, and profile (4) those who need time off. The profiles reflect different support needs and experiences with caregiving.
conclusionsFamily caregivers of patients at the end of life have varying support needs and one size does not fit all. The profiles are relevant for healthcare professionals and volunteers in palliative care as they provide an overview of the main support needs among family caregivers of patients near the end of life. This knowledge could help healthcare professionals giving support.
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