ArticleJournal of the American Geriatrics Society2020
Participant and Caregiver Perspectives on Clinical Research During Covid-19 Pandemic.
Article in Journal of the American Geriatrics Society, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
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Who cites it
24 citing papers in PubMed.
- Adapting the design of a Web-based decision support clinical trial during the COVID-19 pandemic.Trials · 2021Trial
- Military personnel perspectives on participating in health research: A scoping review.PloS one · 2026Article
- Article
- Validation of online delivery of the Australian Pelvic Floor Questionnaire in an Irish obstetric population.International urogynecology journal · 2023Article
- [Health Services research in Germany in Times of COVID-19: How Does the Pandemic Influence Research Processes, Methods and the Personal Situation of Researchers? An Online Survey].Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) · 2023Article
- Psychological sequelae within different populations during the COVID-19 pandemic: a rapid review of extant evidence.Singapore medical journal · 2022Review
- Article
- Intrinsic capacity of older people in the community using WHO Integrated Care for Older People (ICOPE) framework: a cross-sectional study.BMC geriatrics · 2022Article
- The Strategies for Quantitative and Qualitative Remote Data Collection: Lessons From the COVID-19 Pandemic.JMIR formative research · 2022Article
- Article
- A risk assessment tool for resumption of research activities during the COVID-19 pandemic for field trials in low resource settings.BMC medical research methodology · 2021Article
- Digital Technology in Movement Disorders: Updates, Applications, and Challenges.Current neurology and neuroscience reports · 2021Review
- Panic and pandemic: Narrative review of the literature on the links and risks of panic disorder as a consequence of the SARS-CoV-2 pandemic.L'Encephale · 2021Review
- Design of a virtual longitudinal observational study in Parkinson's disease (AT-HOME PD).Annals of clinical and translational neurology · 2021Observational
- HIV prevention research and COVID-19: putting ethics guidance to the test.BMC medical ethics · 2021Article
- Video-based Parkinson's disease assessments in a nationwide cohort of Fox Insight participants.Clinical parkinsonism & related disorders · 2021Article
- A scoping review of patient engagement activities during COVID-19: More consultation, less partnership.PloS one · 2021Article
- A Risk Assessment Tool for Resumption of Research Activities During the COVID-19 Pandemic.Research square · 2020Article
- Clinical Research in Hepatology in the COVID-19 Pandemic and Post-Pandemic Era: Challenges and the Need for Innovation.Hepatology (Baltimore, Md.) · 2020Article
- Psychogeriatric research during COVID-19 pandemic: qualitative analysis of participant views.International psychogeriatrics · 2020Article
Corrections and comments
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8 authors.
Funding
Abstract
BACKGROUND/
objectivesThe COVID-19 pandemic has massively disrupted essential clinical research. Many regulatory organizations have rightfully advocated to temporarily halt enrollment and curtail all face-to-face interactions. Views and opinions of patients and their caregivers are seldom considered while making such decisions. The objective was to study older participants' and their caregivers' perspectives to participate in ongoing clinical research during the COVID-19 pandemic.
designCross-sectional.
settingVISN-16/Geriatric Research, Education and Clinical Center (GRECC), Department of Veterans Affairs.
participantsOlder participants and their caregivers (N = 51) enrolled in ongoing clinical research studies. MEASUREMENTS: Questions about perceptions of safety to attend research visit, the level of panic among the general public, and medical center's preparedness in handling the pandemic. Other questions identified the source of pandemic information and the preference of a phone or in-person visit.
resultsMean age was 69.3 (±9.4) years, 53% were male, 39% were caregivers, and 65% were Caucasian. Majority (78%) of the participants felt safe/very safe attending the scheduled research appointment; 63% felt that the extra screening made them feel safe/very safe; 82% felt that the medical center was prepared/very prepared for the pandemic. Participants split evenly on their preference for phone versus in-person visits. Family members and television news media were the commonly used sources of pandemic information irrespective of their education. Perceptions were influenced by gender and source of information, not by age or education. Females perceived higher level of panic compared to males (P = .02). Those relying on news media felt safer compared to those that relied on family members (P = .008).
conclusionEven though informants felt that the medical center was prepared to handle the pandemic, only half the participants preferred the in-person visit. Pandemic information was obtained from family members or the television news media. Knowing patients' perspectives may help researchers be better prepared for future pandemics. J Am Geriatr Soc 68:E14-E18, 2020.
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