ArticleDevelopmental medicine and child neurology2021
Healthcare use by children and young adults with cerebral palsy.
Article in Developmental medicine and child neurology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it, 40 citations in OpenAlex.
- Gaps in transitional care to adulthood for patients with cerebral palsy: a systematic review.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2023Pooled it
- Mortality Risk Between Ages 11 and 22 Years Among Young People With Neurodisability in England: A National Cohort Study Using Linked Health and Education Data.Paediatric and perinatal epidemiology · 2026Article
- Caregiver Health Literacy and Healthcare Utilization Behaviors: A Prospective Study Comparing Caregivers of Orthopaedic Patients With Chronic Versus Acute Conditions.Journal of the Pediatric Orthopaedic Society of North America · 2026Article
- A systematic review of economic evaluations of community-based healthcare interventions for neurodisability management.Health economics review · 2026Review
- Phenotyping Neurodisability in Hospital Records in England: A National Birth Cohort Using Linked Administrative Data.Paediatric and perinatal epidemiology · 2025Article
- Adapting a Participatory Group Programme for Caregivers of Children with Complex Neurodisability from Low-, Middle-Income Countries to a High-Income Setting: Moving from "Baby Ubuntu" to "Encompass".International journal of environmental research and public health · 2025Article
- Article
- Requirements for and Barriers to Rehabilitation Services for Children With Disabilities in Middle- and High-Income Countries: Scoping Review.Interactive journal of medical research · 2024Article
- Planned and unplanned hospital admissions and health-related school absence rates in children with neurodisability: Protocol for a population-based study using linked education and hospital data from England.NIHR open research · 2024Article
- 'I'm proud of my son with CP': Cerebral palsy caregivers' experiences, Gauteng province.African journal of disability · 2024Article
- Unmet Health Needs among Young Adults with Cerebral Palsy in Ireland: A Cross-Sectional Study.Journal of clinical medicine · 2022Article
- Implementing public involvement standards in cerebral palsy register research.Frontiers in rehabilitation sciences · 2022Article
- Prevalence of long-term mechanical insufflation-exsufflation in children with neurological conditions: a population-based study.Developmental medicine and child neurology · 2021Article
- Patterns of Health Service Use Among Young People With Cerebral Palsy in England.Frontiers in neurology · 2021Article
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Authors and funding
7 authors at 3 institutions in 1 country.
Funding
Abstract
aimTo link routinely collected health data to a cerebral palsy (CP) register in order to enable analysis of healthcare use by severity of CP.
methodThe Northern Ireland Cerebral Palsy Register was linked to hospital data. Data for those on the CP register born between 1st January 1981 and 31st December 2009 and alive in 2004 were extracted, forming a CP cohort (n=1684; 57% males, 43% females; aged 0-24y). Frequencies of healthcare events, and the reasons for them, were reported according to CP severity and compared with those without CP who had had at least one hospital attendance in Northern Ireland within the study period.
resultsCases of CP represented 0.3% of the Northern Ireland population aged 0 to 24 years but accounted for 1.6% of hospital admissions and 1.6% of outpatient appointments. They had higher rates of elective admissions and multi-day hospital stays than the general population. Respiratory conditions were the most common reason for emergency admissions. Those with most severe CP were 10 times more likely to be admitted, and four times more likely to attend outpatients, than those with mild CP.
interpretationLinkage between a register and routinely collected healthcare data provided a confirmed cohort of cases of CP that was sufficiently detailed to analyse healthcare use by disease severity.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.