Evidence map›Paper›PMID 32313700›Full record

ArticleJournal of clinical and translational science2020

Using REDCap to track stakeholder engagement: A time-saving tool for PCORI-funded studies.

Sabina B Gesell, Jacqueline R Halladay, Laurie H Mettam, Mysha E Sissine, B Lynette Staplefoote-Boynton, Pamela W Duncan

Registry-linked trialAbstract read
In one paragraph

Article in Journal of clinical and translational science, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02588664 (Early Supported Discharge for Improving Functional Outcomes After Stroke), which is not on this map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02588664 nacompletednot on this map

Early Supported Discharge for Improving Functional Outcomes After Stroke

TypeinterventionalSponsorWake Forest University Health SciencesRan2016 to 2020Enrolled6,024ConditionsStroke, Transient Ischemic AttackArmsCOMPASS Intervention
3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

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  10. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Sabina B GesellDepartment of Social Sciences and Health Policy and Department of Implementation Science, Wake Forest School of Medicine, Winston-Salem, NC, USA.ORCID https://orcid.org/0000-0002-1997-9816
Jacqueline R HalladayDepartment of Family Medicine, University of North Carolina School of Medicine at Chapel Hill, Chapel Hill, NC, USA.
Laurie H MettamDepartment of Epidemiology, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Mysha E SissineDepartment of Neurology, Wake Forest School of Medicine, Winston-Salem, NC, USA.
B Lynette Staplefoote-BoyntonBrody School of Medicine, East Carolina University, Greenville, NC, USA.
Pamela W DuncanDepartment of Neurology, Wake Forest School of Medicine, Winston-Salem, NC, USA.

Funding

Re-Entry Supplement: Investigation of Oral Microbial Enzymes for the Detection and Treatment of Periodontal DiseaseUL1TR002489 · NCATS · UNIV OF NORTH CAROLINA CHAPEL HILL · PI BUSE, JOHN BERNARD, SHAHEEN, NICHOLAS J · 2018 to 2022
$48.6M
Wake Forest Clinical and Translational Science AwardUL1TR001420 · NCATS · WAKE FOREST UNIVERSITY HEALTH SCIENCES · PI ARD, JAMY D, FOLEY, KRISTIE L · 2015 to 2023
$32.3M
NCATS NIH HHS UL1 TR001420NCATS NIH HHS UL1 TR002489
6 · The paper itself

Abstract

backgroundResearch Electronic Data Capture (REDCap) is a secure, web-based electronic data capture application for building and managing surveys and databases. It can also be used for study management, data transfer, and data export into a variety of statistical programs. REDcap was developed and supported by the National Center for Advancing Translational Sciences Program and is used in over 3700 institutions worldwide. It can also be used to track and measure stakeholder engagement, an integral element of research funded by the Patient-Centered Outcomes Research Institute (PCORI). Continuously and accurately tracking and reporting on stakeholder engagement activities throughout the life of a PCORI-funded trial can be challenging, particularly in complex trials with multiple types of engagement.

methodsIn this paper, we show our approach for collecting and capturing stakeholder engagement activities using a shareable REDCap tool in one of the PCORI's first large pragmatic clinical trials (the Comprehensive Post-Acute Stroke Services) to inform other investigators planning cluster-randomized pragmatic trials. Benefits and challenges are highlighted for researchers seeking to consistently monitor and measure stakeholder engagement.

conclusionsWe describe how REDCap can provide a time-saving approach to capturing how stakeholders engage in a PCORI-funded study and reporting how stakeholders influenced the study in progress reports back to PCORI.

Indexed as

Community-based participatory researchcomparative effectiveness researchpatient engagementpragmatic clinical trialresearch designstroke

Identifiers

PMID32313700
PMCPMC7159814

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.