ArticleInternational journal of community based nursing and midwifery2020
Designing and Validation of Health-Related Quality of Life Inventory for Family Caregivers of Hemodialysis Patients.
Article in International journal of community based nursing and midwifery, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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14 citing papers in PubMed, 21 citations in OpenAlex.
- Impact of caregiving burden on family caregivers of older adults with chronic diseases.Frontiers in psychiatry · 2026Article
- Caregiver burden in family caregivers of individuals with cancer in Iran: an analytical cross-sectional study.Journal of health, population, and nutrition · 2025Article
- Explaining the multifaceted experiences of family caregivers of stroke survivors: a qualitative study in Iran.BMJ open · 2025Article
- Phased therapeutic intervention improves long-term prognosis of new hemodialysis patients.Pakistan journal of medical sciences · 2024Article
- The Hemodialysis Distress Thermometer for Caregivers (HD-DT-C): development and testing of the psychometric properties of a new tool for screening psychological distress among family caregivers of adults on hemodialysis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Designing and validating of a questionnaire measuring perceived self-care ability (PSCA) in chronic stroke patients at home.BMC neurology · 2024Article
- Relationship between fatigue and quality of life and related factors in family caregivers of patients on hemodialysis.BMC psychiatry · 2023Article
- Perceived stress, social support, and insomnia in hemodialysis patients and their family caregivers: an actor-partner interdependence mediation model analysis.Frontiers in psychology · 2023Article
- Development and psychometric properties evaluation of caregiver burden questionnaire in family caregivers of hemodialysis patients.BMC nursing · 2022Article
- Development and psychometric evaluation of Sexual and Reproductive Health Assessment Scale for women with educable intellectual disability (SRH-WIDS): a sequential exploratory mixed-method study.BMC women's health · 2022Article
- Comparison of Iran's nursing education with developed and developing countries: a review on descriptive-comparative studies.BMC nursing · 2022Article
- Psychometric Properties of the Persian Version of Palliative Care Outcome Scale (POS) in Adult Patients With Cancer.Frontiers in psychology · 2022Article
- Investigating the relationship between quality of life and hope in family caregivers of hemodialysis patients and related factors.BMC nephrology · 2021Article
- Psychological consequences for family caregivers of patients receiving hemodialysis: threat or opportunity?BMC psychology · 2021Article
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFamily caregivers are important sources of care for hemodialysis patients. Although caring for a family member is a pleasant feeling, experiencing lots of physical and psychological caregiving burden influences the quality of life among family caregivers of hemodialysis patients. This study aimed to design and validate the quality of life inventory for family caregivers of patients on hemodialysis.
methodsA sequential-exploratory mixed method was conducted in Tehran, Iran, in 2017-2018. In the qualitative phase, the researcher conducted in-depth semi-structured interviews with 19 participants. Finally, a pool of 93 items was extracted from this phase. Then, psychometric properties such as face validity (Impact Score>1.5), content validity ratio (CVR>0.63), content validity index (Item Content Validity Index: ICVI>0.78 , Scale Content Validity Index/Average: SCVI/Ave>0.8) and Kappa value (Kappa>0.7, internal consistency (Cronbach's alpha>0.7), relative reliability (ICC: interclass correlation coefficient), absolute reliability (Standard Error of Measurement: SEM and Minimal Detectable Changes: MDC), convergent validity (Correlation Coefficient between 0.4-0.7), interpretability, responsiveness, feasibility, and ceiling and floor effects were assesse.
resultsThe quality of life inventory for family caregivers of hemodialysis patients was developed with 34 items and five factors (namely patient care burden, conflict, positive perception of situations, self-actualization, fear, and concern). The findings confirm that the scale is acceptable regarding validity, reliability and other measurement features.
conclusionsThis inventory is consistent with the health care status in Iran. Therefore, it can be used to measure the quality of life among family caregivers of hemodialysis patients.
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