ArticleInternational journal of community based nursing and midwifery2020
Coping with Caregiving Stress in Families of Children with Congenital Heart Disease: A Qualitative Study.
Article in International journal of community based nursing and midwifery, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
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Who cites it
17 citing papers in PubMed.
- The Effect of an Educational Application on The Quality of Life and Treatment Adherence in Mothers of Children with Congenital Heart Disease Undergoing Cardiac Surgery: A Randomized Clinical Trial.International journal of community based nursing and midwifery · 2025Trial
- Article
- Longer-term experiences of families of children with dextro-transposition of the great arteries: a qualitative study.Pediatric research · 2026Article
- The effect of a family-centered care program on the psychological outcomes of births with congenital malformations: A study protocol.Journal of education and health promotion · 2026Article
- Article
- Psychological Challenges Faced by Mothers of Children with Congenital Heart Disease: A Mixed-Methods Study at a Tertiary Care Hospital.Journal of pharmacy & bioallied sciences · 2025Article
- Understanding the experience of the mothers' ability to take care of their preterm infants related to in-hospital and post-discharge: a qualitative content analysis.BMC pediatrics · 2025Article
- Queens of hearts: Exploring the lived experiences of mothers caring for infants with complex congenital heart disease in Sri Lanka.Journal of health psychology · 2024Article
- The role of spirituality in the well-being of families with children with congenital heart disease: scoping review.Translational pediatrics · 2024Article
- Stress Coping Strategies in Parents of Newborns and Infants with Congenital Cyanotic Heart Disease with Regard to Stress Levels and Negative Emotions.Children (Basel, Switzerland) · 2024Article
- The family caregiving; A Rogerian concept analysis of Muslim perspective & Islamic sources.Heliyon · 2024Review
- Development and validation of a questionnaire to measure the congenital heart disease of children's family stressor.Frontiers in public health · 2024Article
- Toxic Stress as a Potential Factor Inducing Negative Emotions in Parents of Newborns and Infants with Cyanotic Congenital Heart Disease.Children (Basel, Switzerland) · 2023Article
- Patience with foster children as a major problem for grandparents in the role of kinship carers aged 60 + and the psychosocial determinants of this deficit.BMC geriatrics · 2023Article
- A Qualitative Study of the Spiritual Aspects of Parenting a Child with Down Syndrome.Healthcare (Basel, Switzerland) · 2022Article
- Resilience and Associated Factors in Mothers of Children with Congenital Heart Disease: A Cross-Sectional Study.International journal of community based nursing and midwifery · 2021Article
- The Experience of Uncertainty in Mothers Caring for Children at Home after Palliative Heart Surgery.Indian journal of palliative careArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe families of children with congenital heart disease experience significant stress as to the care of the child and need to cope with stress. Accordingly, understanding of how families cope and use coping strategies is more important to help them better cope with stressful situations caused by caregiving. This study aimed to explore coping strategies used by families in the face of caregiving stress.
methodsThis qualitative study was conducted on 40 eligible participants from the families of children with congenital heart disease. They were recruited through a purposive sampling method from those referred to hospitals in Mashhad, Iran. In-depth and semi-structured interviews were used for data collection from November 2017 to December 2018. The data were analyzed using conventional content analysis, and MAXQDA software (Ver.2010) was used to manage the data encoding process.
resultsAccording to the results, effort to maintain well-being emerged as the main theme which included five categories: "spirituality in caregiving", "acceptance and adjustment", "optimism and hopefulness", "self-control and patience", and " management of psychological needs".
conclusionFamilies used various coping strategies including spirituality, acceptance, optimism, patience, and management of psychological needs based on their beliefs, attitudes, abilities, and available resources for coping with caregiving stress. The results can help the nurses and health care professionals to develop appropriate educational, supportive, and psychological interventions based on the family's needs to cope effectively with caregiving stress.
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