ArticleAMIA ... Annual Symposium proceedings. AMIA Symposium2019
Parent Perspectives on Pediatric Inpatient OpenNotes.
Article in AMIA ... Annual Symposium proceedings. AMIA Symposium, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 13 citations in OpenAlex.
- Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles.BMC medical ethics · 2025Article
- Service Design and Evaluation of OpenNotes for Craniofacial Deformity Management in Patients and their Caregivers.Healthcare informatics research · 2024Article
- Perception of Physicians' Notes Among Parents of Different Health Literacy Levels.Hospital pediatrics · 2024Article
- Family Perception of OpenNotes in the Neonatal Intensive Care Unit.Applied clinical informatics · 2024Article
- Re-designing inpatient nursing notes shared with families: an opportunity to enhance family-centered care delivery.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
- Article
- Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review.Journal of medical Internet research · 2022Article
- Barriers and Facilitators to the Implementation of Family-Centered Technology in Complex Care: Feasibility Study.Journal of medical Internet research · 2022Article
- In Anticipation of Sharing Pediatric Inpatient Notes: Focus Group Study With Stakeholders.Journal of participatory medicine · 2022Article
- Lessons Learned from OpenNotes Learning Mode and Subsequent Implementation across a Pediatric Health System.Applied clinical informatics · 2022Article
- Stakeholder Perspectives in Anticipation of Sharing Physicians' Notes With Parents of Hospitalized Children.Academic pediatrics · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 2 institutions in 1 country.
Funding
Abstract
introduction169 U.S. health systems now engage in OpenNotes: a movement to share clinical notes with patients. Few studies have focused on releasing notes during hospitalization, pediatrics, or parents/caregiver perspectives.
methodsA focus group was conducted with eight parents with experience caring for a hospitalized child at a Midwest children's hospital. In the 2-hour session, parents were asked about their perspectives of the idea of sharing inpatient doctors' daily notes with parents during their child's hospitalization. Qualitative analysis was conducted to elicit themes related to the potential benefits and challenges of sharing inpatient notes.
resultsThe most mentioned benefits included notes providing information as a reference for improved family education/understanding, communication/continuity, and advocacy/empowerment. Challenges were primarily related to note content, impaired communication and negative impact on families.
conclusionParticipants identified multiple potential benefits of and challenges to sharing notes with parents during their child's hospitalization but also acknowledged the impact on healthcare professionals who work alongside them.
Indexed as
Identifiers
32308877PMC7153057W3028221391What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.