Evidence map›Paper›PMID 32303519›Full record

ArticleCMAJ open

Codesigning care improvements for women living with HIV: a patient-oriented deliberative dialogue workshop in Montréal, Quebec.

Nadia O'Brien, Susan Law, Karène Proulx-Boucher, Brigitte Ménard, Lashanda Skerritt, Isabelle Boucoiran, Joseph Cox, Neil Andersson, Alexandra de Pokomandy

Abstract read
In one paragraph

Article in CMAJ open. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

  1. Review
  2. Article
  3. Review
  4. Article
  5. Article
  6. Evaluating Public Participation in a Deliberative Dialogue: A Single Case Study.International journal of health policy and management · 2022
    Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Dissemination of the Women-Centred HIV Care Model: A Multimodal Process and Evaluation.Journal of the International Association of Providers of AIDS Care
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Nadia O'BrienDepartments of Family Medicine (O'Brien, Skerritt, Andersson, de Pokomandy) and Epidemiology, Biostatistics and Occupational Health (Cox), McGill University; Chronic Viral Illness Service (O'Brien, Proulx-Boucher, Ménard, Cox, de Pokomandy), Department of Medicine, McGill University Health Centre, Montréal, Que.; Institute for Better Health (Law), Trillium Health Partners, Mississauga, Ont.; Institute for Health Policy, Management & Evaluation (Law), University of Toronto, Toronto, Ont.; Department of Obstetrics and Gynecology (Boucoiran), Centre hospitalier universitaire Sainte-Justine; Departments of Social and Preventive Medicine (Boucoiran) and Obstetrics and Gynecology (Boucoiran), Université de Montréal, Montréal Que.; Centro de Investigación de Enfermedades Tropicales (Andersson), Universidad Autónoma de Guerrero, Acapulco, Mexico.
Susan LawDepartments of Family Medicine (O'Brien, Skerritt, Andersson, de Pokomandy) and Epidemiology, Biostatistics and Occupational Health (Cox), McGill University; Chronic Viral Illness Service (O'Brien, Proulx-Boucher, Ménard, Cox, de Pokomandy), Department of Medicine, McGill University Health Centre, Montréal, Que.; Institute for Better Health (Law), Trillium Health Partners, Mississauga, Ont.; Institute for Health Policy, Management & Evaluation (Law), University of Toronto, Toronto, Ont.; Department of Obstetrics and Gynecology (Boucoiran), Centre hospitalier universitaire Sainte-Justine; Departments of Social and Preventive Medicine (Boucoiran) and Obstetrics and Gynecology (Boucoiran), Université de Montréal, Montréal Que.; Centro de Investigación de Enfermedades Tropicales (Andersson), Universidad Autónoma de Guerrero, Acapulco, Mexico.
Karène Proulx-BoucherDepartments of Family Medicine (O'Brien, Skerritt, Andersson, de Pokomandy) and Epidemiology, Biostatistics and Occupational Health (Cox), McGill University; Chronic Viral Illness Service (O'Brien, Proulx-Boucher, Ménard, Cox, de Pokomandy), Department of Medicine, McGill University Health Centre, Montréal, Que.; Institute for Better Health (Law), Trillium Health Partners, Mississauga, Ont.; Institute for Health Policy, Management & Evaluation (Law), University of Toronto, Toronto, Ont.; Department of Obstetrics and Gynecology (Boucoiran), Centre hospitalier universitaire Sainte-Justine; Departments of Social and Preventive Medicine (Boucoiran) and Obstetrics and Gynecology (Boucoiran), Université de Montréal, Montréal Que.; Centro de Investigación de Enfermedades Tropicales (Andersson), Universidad Autónoma de Guerrero, Acapulco, Mexico.
Brigitte MénardDepartments of Family Medicine (O'Brien, Skerritt, Andersson, de Pokomandy) and Epidemiology, Biostatistics and Occupational Health (Cox), McGill University; Chronic Viral Illness Service (O'Brien, Proulx-Boucher, Ménard, Cox, de Pokomandy), Department of Medicine, McGill University Health Centre, Montréal, Que.; Institute for Better Health (Law), Trillium Health Partners, Mississauga, Ont.; Institute for Health Policy, Management & Evaluation (Law), University of Toronto, Toronto, Ont.; Department of Obstetrics and Gynecology (Boucoiran), Centre hospitalier universitaire Sainte-Justine; Departments of Social and Preventive Medicine (Boucoiran) and Obstetrics and Gynecology (Boucoiran), Université de Montréal, Montréal Que.; Centro de Investigación de Enfermedades Tropicales (Andersson), Universidad Autónoma de Guerrero, Acapulco, Mexico.
Lashanda SkerrittDepartments of Family Medicine (O'Brien, Skerritt, Andersson, de Pokomandy) and Epidemiology, Biostatistics and Occupational Health (Cox), McGill University; Chronic Viral Illness Service (O'Brien, Proulx-Boucher, Ménard, Cox, de Pokomandy), Department of Medicine, McGill University Health Centre, Montréal, Que.; Institute for Better Health (Law), Trillium Health Partners, Mississauga, Ont.; Institute for Health Policy, Management & Evaluation (Law), University of Toronto, Toronto, Ont.; Department of Obstetrics and Gynecology (Boucoiran), Centre hospitalier universitaire Sainte-Justine; Departments of Social and Preventive Medicine (Boucoiran) and Obstetrics and Gynecology (Boucoiran), Université de Montréal, Montréal Que.; Centro de Investigación de Enfermedades Tropicales (Andersson), Universidad Autónoma de Guerrero, Acapulco, Mexico.
Isabelle BoucoiranDepartments of Family Medicine (O'Brien, Skerritt, Andersson, de Pokomandy) and Epidemiology, Biostatistics and Occupational Health (Cox), McGill University; Chronic Viral Illness Service (O'Brien, Proulx-Boucher, Ménard, Cox, de Pokomandy), Department of Medicine, McGill University Health Centre, Montréal, Que.; Institute for Better Health (Law), Trillium Health Partners, Mississauga, Ont.; Institute for Health Policy, Management & Evaluation (Law), University of Toronto, Toronto, Ont.; Department of Obstetrics and Gynecology (Boucoiran), Centre hospitalier universitaire Sainte-Justine; Departments of Social and Preventive Medicine (Boucoiran) and Obstetrics and Gynecology (Boucoiran), Université de Montréal, Montréal Que.; Centro de Investigación de Enfermedades Tropicales (Andersson), Universidad Autónoma de Guerrero, Acapulco, Mexico.
Joseph CoxDepartments of Family Medicine (O'Brien, Skerritt, Andersson, de Pokomandy) and Epidemiology, Biostatistics and Occupational Health (Cox), McGill University; Chronic Viral Illness Service (O'Brien, Proulx-Boucher, Ménard, Cox, de Pokomandy), Department of Medicine, McGill University Health Centre, Montréal, Que.; Institute for Better Health (Law), Trillium Health Partners, Mississauga, Ont.; Institute for Health Policy, Management & Evaluation (Law), University of Toronto, Toronto, Ont.; Department of Obstetrics and Gynecology (Boucoiran), Centre hospitalier universitaire Sainte-Justine; Departments of Social and Preventive Medicine (Boucoiran) and Obstetrics and Gynecology (Boucoiran), Université de Montréal, Montréal Que.; Centro de Investigación de Enfermedades Tropicales (Andersson), Universidad Autónoma de Guerrero, Acapulco, Mexico.
Neil AnderssonDepartments of Family Medicine (O'Brien, Skerritt, Andersson, de Pokomandy) and Epidemiology, Biostatistics and Occupational Health (Cox), McGill University; Chronic Viral Illness Service (O'Brien, Proulx-Boucher, Ménard, Cox, de Pokomandy), Department of Medicine, McGill University Health Centre, Montréal, Que.; Institute for Better Health (Law), Trillium Health Partners, Mississauga, Ont.; Institute for Health Policy, Management & Evaluation (Law), University of Toronto, Toronto, Ont.; Department of Obstetrics and Gynecology (Boucoiran), Centre hospitalier universitaire Sainte-Justine; Departments of Social and Preventive Medicine (Boucoiran) and Obstetrics and Gynecology (Boucoiran), Université de Montréal, Montréal Que.; Centro de Investigación de Enfermedades Tropicales (Andersson), Universidad Autónoma de Guerrero, Acapulco, Mexico.
Alexandra de PokomandyDepartments of Family Medicine (O'Brien, Skerritt, Andersson, de Pokomandy) and Epidemiology, Biostatistics and Occupational Health (Cox), McGill University; Chronic Viral Illness Service (O'Brien, Proulx-Boucher, Ménard, Cox, de Pokomandy), Department of Medicine, McGill University Health Centre, Montréal, Que.; Institute for Better Health (Law), Trillium Health Partners, Mississauga, Ont.; Institute for Health Policy, Management & Evaluation (Law), University of Toronto, Toronto, Ont.; Department of Obstetrics and Gynecology (Boucoiran), Centre hospitalier universitaire Sainte-Justine; Departments of Social and Preventive Medicine (Boucoiran) and Obstetrics and Gynecology (Boucoiran), Université de Montréal, Montréal Que.; Centro de Investigación de Enfermedades Tropicales (Andersson), Universidad Autónoma de Guerrero, Acapulco, Mexico alexandra.depokomandy@mcgill.ca.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundCare services have not been sufficiently adapted to meet the comprehensive care needs of women living with HIV. Our study objective was to engage patients and providers in codesigning care recommendations to improve care for this population in the province of Quebec.

methodsWe conducted a 5-hour deliberative dialogue workshop in April 2019 in Montréal as the final phase of a mixed-methods study investigating comprehensive care for women living with HIV. The study drew on data from the Canadian HIV Women's Sexual and Reproductive Health Cohort Study (CHIWOS). Recruitment was guided by a purposive maximum-variation sampling strategy to ensure an appropriate mix of participants and was facilitated by our existing CHIWOS networks. Participants included patients (women living with HIV) and HIV care providers (doctors, nurses, pharmacists). The workshop was facilitated professionally and included a synthesis of the evidence, small- and large-group deliberations, and voting on care improvements.

resultsEight patients and 8 HIV care providers participated. Drawing on identified care priorities, the participants identified 4 relatively rapid care improvements and 3 longer-term improvements. The rapid care improvements included delegating medical acts to members of multidisciplinary care teams; greater involvement of HIV community members within care settings and health care decision-making; creating a women's health information booklet; and increasing HIV education among all health care providers and raising awareness of women's care needs beyond HIV-specific care among HIV care providers. The longer-term care improvements included advocating for complete financial coverage of antiretroviral therapy within the government-sponsored Medicare program, facilitating access to allied care providers (e.g., physiotherapists and psychologists) and launching a population-wide campaign to increase awareness about the Undetectable = Untransmittable (U=U) initiative and other HIV advances.

interpretationThe deliberative dialogue workshop yielded evidence-based, stakeholder-driven recommendations to improve the comprehensive care of women living with HIV in Quebec.

Indexed as

Delivery of Health CareQuality ImprovementWomen's HealthFemaleHIV InfectionsHumansPublic Health SurveillanceQuality Assurance, Health CareQuebec

Identifiers

PMID32303519
PMCPMC7207038

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.