ArticleBMC public health2020
Economic burden and mental health of primary caregivers of perinatally HIV infected adolescents from Kilifi, Kenya.
Article in BMC public health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
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Who cites it
22 citing papers in PubMed.
- Economic Empowerment Interventions on Mental Health Outcomes Among People Living with HIV in Low and Middle-Income Countries: A Systematic Literature Review.Behavioral sciences (Basel, Switzerland) · 2026Review
- Economic burden of depressive disorders and HIV for people living with HIV in Uganda.Health policy and planning · 2026Article
- Integration of specialised mental health services in an HIV clinic in a low resource setting.BMJ open quality · 2026Article
- The correlates and experiences of HIV-related intersectional stigma among caregivers of adolescents living with HIV during COVID-19 in KwaZulu-Natal, South Africa: Results from a mixed method study.PLOS global public health · 2026Article
- Exploring barriers to and opportunities for improving mental healthcare access for women caregivers living with HIV in Nigeria: A qualitative study.PLOS global public health · 2026Article
- Uncovering the hidden costs of free tuberculosis care: economic narratives of informal treatment supporters in rural Ghana.BMC public health · 2025Article
- 'I no longer worry about money for transport to the health centre' - economic empowerment of caregivers of children living with HIV through Village Savings and Loan Associations: experiences and lessons from the 'Towards an AIDS Free Generation Program in Uganda (TAFU)'.BMC health services research · 2025Article
- Prevalence and factors associated with mental health challenges among adolescents with HIV and viral non-suppression in rural northern Uganda.Frontiers in public health · 2025Article
- Using a cash transfer plus SMS nudge package to improve the wellbeing among caregivers of adolescents living with HIV during the COVID-19 epidemic in South Africa: A pilot randomised controlled trial.PLOS global public health · 2025Article
- "We did more than survive": lessons learned from studies of risk and resilience of young people growing up with HIV and mental health needs.AIDS care · 2024Article
- Layered vulnerability and researchers' responsibilities: learning from research involving Kenyan adolescents living with perinatal HIV infection.BMC medical ethics · 2024Article
- Methods used to account for caregivers' sex and gender within studies examining the financial burden of caregivers of children and adolescents : Results from a scoping review.ClinicoEconomics and outcomes research : CEOR · 2024Article
- Article
- The Economic Burden of Chronic Diseases with Co-Occurring Depression and Alcohol Use Disorder for People in the Western Cape, South Africa.SSM. Mental health · 2023Article
- Burden of HIV and treatment outcomes among TB patients in rural Kenya: a 9-year longitudinal study.BMC infectious diseases · 2023Article
- Stigma by Association, Parenting Stress, and the Mental Health of Caregivers of Adolescents Living With HIV in Uganda.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2023Article
- An economic incentive package to support the wellbeing of caregivers of adolescents living with HIV during the COVID-19 pandemic in South Africa: a feasibility study protocol for a pilot randomised trial.Pilot and feasibility studies · 2023Article
- Health-Related Quality of Life of HIV-Positive and HIV-Negative Pregnant Women in an Impoverished Area: Cross-sectional Study.JMIR public health and surveillance · 2022Article
- Correlates of health-related quality of life in primary caregivers of perinatally HIV infected and HIV exposed uninfected adolescents at the Kenyan Coast.Health and quality of life outcomes · 2022Article
- Psychosocial and mental health challenges faced by emerging adults living with HIV and support systems aiding their positive coping: a qualitative study from the Kenyan coast.BMC public health · 2022Article
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7 authors.
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Abstract
backgroundEighty per cent of perinatally HIV infected (PHI) adolescents live in sub-Saharan Africa (sSA), a setting also characterized by huge economic disparities. Caregiving is crucial to the management of chronic illness such as HIV/AIDS, but the economic costs and mental disorders borne by caregivers of PHI adolescents often go unnoticed. In this study, we evaluated economic costs, coping strategies and association between economic cost and mental health functioning of caregivers of perinatally HIV infected adolescents in Kilifi, Kenya.
methodsWe used a cost of illness descriptive analysis approach to determine the economic burden and Patient Health Questionnaire (PHQ-9) to assess the caregivers' mental health. Cross-sectional data were collected from 121 primary caregivers of PHI adolescents in Kilifi using a structured cost questionnaire. Economic costs (direct and indirect costs) were measured from primary caregivers' perspective. We used descriptive statistics in reporting the results of this study.
resultsAverage monthly direct and indirect costs per primary caregiver was Ksh 2784.51 (USD 27.85). Key drivers of direct costs were transportation (66.5%) and medications (13.8%). Total monthly costs represented 28.8% of the reported caregiver monthly earnings. Majority of the caregivers borrowed resources to cope with high economic burden. About 10.7% of primary caregivers reported depressive symptoms. Caregivers with positive depression screen (PHQ-9 score ≥ 10) had high average monthly direct and indirect costs. However, this was not statistically different compared to costs incurred by caregivers who screened negative for depressive symptoms.
conclusionOur study indicates that HIV/AIDS is associated with a significant economic burden for caregivers of adolescents living with HIV. Results underscore the need for developing economic empowerment and social support programmes that reduce the economic burden of caring for perinatally infected adolescent. These efforts may improve the mental health and quality of life of caregivers of adolescents living with HIV.
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