Evidence map›Paper›PMID 32299401›Full record

ArticleBMC pediatrics2020

Protocol for the development and validation procedure of the managing the link and strengthening transition from child to adult mental health care (MILESTONE) suite of measures.

P Santosh, L Adams, F Fiori, N Davidović, G de Girolamo, G C Dieleman, T Franić, N Heaney, K Lievesley, J Madan and 18 more

Registry-linked trialAbstract readClinical Trial Protocol
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC pediatrics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03013595 (The Effectiveness of Managed Transition in Improving the Health and Social Outcomes for Young People Transitioning From Child to Adult Mental Health Care), which is not on this map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03013595 naunknown statusnot on this map

The Effectiveness of Managed Transition in Improving the Health and Social Outcomes for Young People Transitioning From Child to Adult Mental Health Care: the MILESTONE Study

TypeinterventionalSponsorUniversity of WarwickRan2015 to 2018Enrolled1,000ConditionsMental Health Impairment, Mental Health DisorderArmsTRAM feedback
3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

28 authors.

P SantoshDepartment of Child and Adolescent Psychiatry, King's College London, London, UK. paramala.1.santosh@kcl.ac.uk.
L AdamsSchool of Psychology, Plymouth University, Plymouth, UK.
F FioriDepartment of Child and Adolescent Psychiatry, King's College London, London, UK.
N DavidovićDepartment of Psychiatry, Clinical Hospital Center Split, Split, Croatia.
G de GirolamoUnità di Psichiatria Epidemiologica e Valutativa, IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Brescia, Italy.
G C DielemanDepartment of Child and Adolescent Psychiatry and Psychology, Erasmus Medical Center, Rotterdam, The Netherlands.
T FranićDepartment of Psychiatry, Clinical Hospital Center Split, Split, Croatia.
N HeaneyDepartment of Child and Adolescent Psychiatry, King's College London, London, UK.
K LievesleyDepartment of Child and Adolescent Psychiatry, King's College London, London, UK.
J MadanWarwick Clinical Trials Unit, Warwick Medical School, Warwick Medical School, Coventry, UK.
A MarasYulius Academy, Rotterdam, The Netherlands.
M MastroianniDepartment of Child and Adolescent Psychiatry, King's College London, London, UK.
F McNicholasDepartment of Child and Adolescent Psychiatry, University College Dublin School of Medicine and Medical Science, Dublin, Republic of Ireland.
M PaulCentre for Mental Health and Wellbeing Research, Warwick Medical School, University of Warwick, Coventry, UK.
D Purper-OuakilCHU Montpellier / University of Montpellier; Saint Eloi Hospital, Médecine Psychlogique de l'enfant et de adolescent (MPEA1), Montpellier, France.
I Sagar-OuriaghliDepartment of Child and Adolescent Psychiatry, King's College London, London, UK.
U SchulzeDepartment of Child and Adolescent Psychiatry/Psychotherapy, University of Ulm, Ulm, Germany.
G SignoriniUnità di Psichiatria Epidemiologica e Valutativa, IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Brescia, Italy.
C StreetCentre for Mental Health and Wellbeing Research, Warwick Medical School, University of Warwick, Coventry, UK.
P TahCentre for Mental Health and Wellbeing Research, Warwick Medical School, University of Warwick, Coventry, UK.
S TremmeryDepartment of Neurosciences, Child & Adolescent Psychiatry, University of Leuven, Leuven, Belgium.
H TuomainenCentre for Mental Health and Wellbeing Research, Warwick Medical School, University of Warwick, Coventry, UK.
F C VerhulstDepartment of Child and Adolescent Psychiatry and Psychology, Erasmus Medical Center, Rotterdam, The Netherlands.
J WarwickWarwick Clinical Trials Unit, Warwick Medical School, Warwick Medical School, Coventry, UK.
D WolkeCentre for Mental Health and Wellbeing Research, Warwick Medical School, University of Warwick, Coventry, UK.
J SinghDepartment of Child and Adolescent Psychiatry, King's College London, London, UK.
S P SinghCentre for Mental Health and Wellbeing Research, Warwick Medical School, University of Warwick, Coventry, UK.
MILESTONE Consortium

Funding

FP7 Health 602442
6 · The paper itself

Abstract

backgroundMental health disorders in the child and adolescent population are a pressing public health concern. Despite the high prevalence of psychopathology in this vulnerable population, the transition from Child and Adolescent Mental Health Services (CAMHS) to Adult Mental Health Services (AMHS) has many obstacles such as deficiencies in planning, organisational readiness and policy gaps. All these factors contribute to an inadequate and suboptimal transition process. A suite of measures is required that would allow young people to be assessed in a structured and standardised way to determine the on-going need for care and to improve communication across clinicians at CAMHS and AMHS. This will have the potential to reduce the overall health economic burden and could also improve the quality of life for patients travelling across the transition boundary. The MILESTONE (Managing the Link and Strengthening Transition from Child to Adult Mental Health Care) project aims to address the significant socioeconomic and societal challenge related to the transition process. This protocol paper describes the development of two MILESTONE transition-related measures: The Transition Readiness and Appropriateness Measure (TRAM), designed to be a decision-making aide for clinicians, and the Transition Related Outcome Measure (TROM), for examining the outcome of transition.

methodsThe TRAM and TROM have been developed and were validated following the US FDA Guidance for Patient-reported Outcome Measures which follows an incremental stepwise framework. The study gathers information from service users, parents, families and mental health care professionals who have experience working with young people undergoing the transition process from eight European countries. DISCUSSION: There is an urgent need for comprehensive measures that can assess transition across the CAMHS/AMHS boundary. This study protocol describes the process of development of two new transition measures: the TRAM and TROM. The TRAM has the potential to nurture better transitions as the findings can be summarised and provided to clinicians as a clinician-decision making support tool for identifying cases who need to transition and the TROM can be used to examine the outcomes of the transition process.

trial registrationMILESTONE study registration: ISRCTN83240263 Registered 23-July-2015 - ClinicalTrials.gov NCT03013595 Registered 6 January 2017.

Indexed as

Adolescent Health ServicesMental Health ServicesTransition to Adult CareAdolescentAdultChildCohort StudiesEuropeHumansMental DisordersMental HealthQuality of LifeRandomized Controlled Trials as TopicReproducibility of ResultsAdult mental health servicesChild and adolescent mental health servicesEuropePatient reported outcome measuresTransitionYoung persons

Identifiers

PMID32299401
PMCPMC7161143

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.