ReviewEuropean geriatric medicine2020
A narrative review of facilitating and inhibiting factors in advance care planning initiation in people with dementia.
Review in European geriatric medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it, 45 citations in OpenAlex.
- Factors associated with participation in advance care planning among people with different degrees of cognitive impairment: a systematic review.BMC palliative care · 2026Pooled it
- Barriers for access and utilization of dementia care services in Europe: a systematic review.BMC geriatrics · 2025Pooled it
- Advance Care Planning Intention and Associated Factors Among People With Dementia: A Mixed-Methods Study.Journal of advanced nursing · 2026Article
- Advance Care Planning Among People With Dementia in the Netherlands: Insights From an Exploratory Survey of Health Care Professional Perspectives.Scandinavian journal of caring sciences · 2026Article
- Patient- and Caregiver-Identified Goals for Advance Care Planning in Patients With Dementia or Cognitive Impairment.Dementia (London, England) · 2026Article
- Cultural adaptation of the serious illness conversation guide for caregivers of persons with dementia in Singapore.BMC geriatrics · 2025Article
- Optimizing Advance Care Planning in Dementia: Recommendations From a 33-Country Delphi Study.Journal of pain and symptom management · 2025Article
- "You like to be in control of your own destiny to a degree, don't you?": conscientious autonomy and planning for future care with dementia.BMC palliative care · 2025Article
- Caregivers' Perspectives on Discussions of Medical Treatment Preferences for People Living With Dementia Are Associated With Their Dementia Health Literacy and the Caregiving Relationship.The Gerontologist · 2025Article
- A relational approach to co-create Advance Care Planning with and for people living with dementia: a narrative study.BMC palliative care · 2025Article
- Perspectives on advance care planning needs of persons with advanced dementia from their surrogates and clinicians.PEC innovation · 2023Article
- Development of an Advance Care Planning Portal-Based Tool for Community-Dwelling Persons Living With Cognitive Impairment: The ACPVoice Tool.The American journal of hospice & palliative care · 2023Article
- Advance Care Planning Website for People With Dementia and Their Family Caregivers: Protocol for a Development and Usability Study.JMIR research protocols · 2023Article
- 'A perfect storm' or missed care? Focus group interviews with dementia care professionals on Advance Care Planning.BMC geriatrics · 2023Article
- Advance directives among cognitively impaired persons who had an amyloid PET scan and their care partners: a mixed-methods study.BMC palliative care · 2022Article
- Advance Care Planning in Neurodegenerative Disorders: A Scoping Review.International journal of environmental research and public health · 2022Article
- "People are more afraid of a dementia diagnosis than of death": The challenges of supporting advance care planning for persons with dementia in community settings.Frontiers in dementia · 2022Article
- Exploring Differential Perceptions and Barriers to Advance Care Planning in Dementia among Asian Patient-Caregiver Dyads-A Mixed-Methods Study.International journal of environmental research and public health · 2021Article
- Could we have done better with COVID-19 in nursing homes?European geriatric medicine · 2020Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purpose of the reviewTo identify and assess factors that affect the decisions to initiate advance care planning (ACP) amongst people living with dementia (PwD).
methodsA narrative review was conducted. A keyword search of Medline, CINAHL PsycINFO, and Web of Sciences databases produced 22,234 articles. Four reviewers independently applying inclusion/exclusion criteria resulted in 39 articles. Discrepancies were settled in discussion.
resultsTwenty-eight primary studies and eleven review articles remained. Narrative analysis generated five categories of facilitating and inhibitory factors: people with dementia, family orientation, healthcare professionals (HCP), systemic and contextual factors, and time factors. Key facilitators of ACP initiation were (i) healthcare settings with supportive policies and guidelines, (ii) family members and HCPs who have a supportive relationship with PwD, and (iii) HCPs who received ACP education. Key inhibitors were: (i) lack of knowledge about the dementia trajectory in stakeholders, (ii) lack of ACP knowledge, and (iii) unclear timing to initiate an ACP.
conclusionThis review highlighted the main challenges associated with optimal ACP initiation with PwD. To encourage effective ACP initiation with PwD, succinct policies and guidelines for clinical commissioners are needed. ACP also needs to be discussed with family members in an informal, iterative manner. More research is required on initiation timing given the disease trajectory and changing family dynamics.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.