ArticleBMC health services research2020
"Invisible" visual impairments. A qualitative study of stroke survivors` experience of vision symptoms, health services and impact of visual impairments.
Article in BMC health services research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
29 citing papers in PubMed, 2 syntheses or guidelines pooled it, 50 citations in OpenAlex.
- Reading Difficulties in Individuals with Homonymous Visual Field Defects: A Systematic Review of Reported Interventions.Neuropsychology review · 2025Pooled it
- Interventions for perceptual disorders following stroke.The Cochrane database of systematic reviews · 2022Pooled it
- Trial
- Diagnostics and rehabilitation of post-stroke visual field loss using innovative visual field evaluation. The impact of losing driving privileges (DRIVE-study): Protocol for a randomized controlled trial.Contemporary clinical trials communications · 2026Article
- Prevalence of Visual Symptoms and Deficits Among Inpatients with Acquired Brain Injury.Neurology international · 2026Article
- Development of an easy-read version of the Brain Injury associated Visual Impairment - Impact Questionnaire (BIVI-IQ).Clinical rehabilitation · 2026Article
- Validation of the Vision Impairment Screening Assessment in acute stroke care: a prospective diagnostic accuracy study.European stroke journal · 2026Article
- Orthoptic stroke services in the UK and Ireland: how have they evolved?Eye (London, England) · 2026Article
- Trialling the efficacy of a technological visuo-cognitive training program as a compensatory tool for visual rehabilitation after stroke: A pilot study.PLOS digital health · 2026Article
- Living with a hidden disability - a qualitative study of post-COVID-19 olfactory dysfunction.Frontiers in allergy · 2026Article
- Epidemiology of visuospatial impairment in older adults: the Harmonized Cognitive Assessment Protocol.Innovation in aging · 2026Article
- Understanding the patient experience of newly diagnosed giant cell arteritis.Rheumatology advances in practice · 2026Article
- Components of Service Delivery Models of Care for the Detection, Care and Management of Visual Impairment for Adults and Children with Acquired Brain Injury: A Scoping Review Protocol.The British and Irish orthoptic journal · 2026Article
- Life after stroke: changes in sensory health and the impact on participation.Topics in stroke rehabilitation · 2025Article
- Research Best Practices for Eye Stroke Vision Rehabilitation: A Qualitative Study.Current eye research · 2025Article
- Persistent visual impairments following mild-to-moderate ischemic stroke.Frontiers in ophthalmology · 2025Article
- Transfer of Mitochondria from Healthy Stem Cells to Injured Cells in Stroke with Retinal Impairments.Methods in molecular biology (Clifton, N.J.) · 2025Article
- Sensory substitution and augmentation techniques in cerebral visual impairment: a discussion of lived experiences.Frontiers in human neuroscience · 2025Article
- Occupational Therapists' perspectives of implementing a new rehabilitation intervention for visual field loss due to stroke.NIHR open research · 2025Article
- Patient and public involvement in an evidence synthesis project: description of and reflection on involvement.Research involvement and engagement · 2024Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
backgroundVisual impairments (VIs) have a negative impact on life and affect up to 60% of stroke survivors. Despite this, VIs are often overlooked. This paper explores how persons with VIs experience vision care within stroke health services and how VIs impact everyday life the first 3 months post stroke.
methodsIndividual semi-structured interviews were conducted with 10 stroke survivors 3 months post stroke, and analyzed using qualitative content analysis.
resultsThe main theme, "Invisible" visual impairments, represents how participants experience VIs as an unknown and difficult symptom of stroke and that the lack of attention and appropriate visual care leads to uncertainty about the future. VIs were highlighted as a main factor hindering the participants living life as before. The lack of acknowledgement, information, and systematic vision rehabilitation leads to feelings of being unsupported in the process of coping with VIs.
conclusionVIs are unknown symptoms pre stroke and sequelas after stroke that significantly affect everyday life. VIs and vision rehabilitation needs more attention through all phases of stroke health services. We request a greater awareness of VIs as a presenting symptom of stroke, and that visual symptoms should be included in stroke awareness campaigns. Further, we suggest increased competence and standardized evidence-based clinical pathways for VIs to advance all stroke health services including rehabilitation in order to improve outcomes and adaptation to future life for stroke survivors with VIs.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.