ArticleThe American journal of hospice & palliative care2020
The Impact of Varying Levels of Advance Care Planning Engagement on Perceptions of the End-of-Life Experience Among Caregivers of Deceased Patients With Cancer.
Article in The American journal of hospice & palliative care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 31 citations in OpenAlex.
- Advance care planning impact on caregivers and end-of-life care in advanced cancer.Journal of the National Cancer Institute · 2026Trial
- Trial
- The PREPARE for Your Care program increases advance care planning engagement among diverse older adults with cancer.Cancer · 2021Trial
- Patients' and relatives' perspectives on the quality of end-of-Life care in advanced cancer: From the final months to bereavement.PloS one · 2026Article
- Cross-sectional survey on public attitudes and factors related to physician-assisted dying in Taiwan.BMJ open · 2025Article
- Review
- Measurement and documentation of quality indicators for the end-of-life care of hospital patients a nationwide retrospective record review study.BMC palliative care · 2023Article
- Don't Throw the Baby Out With the Bathwater: Meta-Analysis of Advance Care Planning and End-of-life Cancer Care.Journal of pain and symptom management · 2023Review
- Advance Care Planning and Attainment of Cancer Patients' End-of-Life Preferences: Relatives' Perspective.The American journal of hospice & palliative care · 2023Article
- Decision Making for Patients With Severe Dementia Versus Normal Cognition Near the End of Life.Innovation in aging · 2023Article
- Advance Care Planning in Serious Illness: A Narrative Review.Journal of pain and symptom management · 2023Review
- Code status transitions in patients with high-risk acute myeloid leukemia.Blood advances · 2022Article
- Preoperative Advance Care Planning for Older Adults Undergoing Major Abdominal Surgery.The American journal of hospice & palliative care · 2022Article
- 'Palliative medicine · 2021Article
- Perceptions of Patient Portal Use for Advance Directive Documentation among Older Adults with Multiple Chronic Conditions.Journal of social work in end-of-life & palliative careArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 3 institutions in 1 country.
Funding
Abstract
contextAdvance care planning (ACP) is used to prepare patients and caregivers for future "in the moment" decisions at the end-of-life. Patients with cancer generally do not engage in all 3 components of ACP (documented living will, health-care surrogate, end-of-life discussions); however, little is known about the impact of these varying levels of ACP engagement on caregivers postdeath.
objectiveTo examine the relationship between varying levels of ACP engagement and caregivers' perceptions of cancer decedents' end-of-life experiences.
methodsA secondary analysis of the 2002 to 2014 waves of the Health and Retirement Study data using structural equation modeling was conducted. Five levels of ACP engagement were defined: full (discussions/documents), augmented discussions, documents only, discussions only, and no engagement.
resultsAmong the 2172 cancer death cases, the analyzed sample included 983 cases where end-of-life decisions occurred. Compared to no ACP, all levels of ACP were significantly associated with caregivers' positive perceptions of cancer decedents' end-of-life experiences (
conclusionPartial ACP engagement, not just nonengagement, serves as an important clinically modifiable target to improve the end-of-life care experience among patients with cancer and the perceptions of those experiences among bereaved caregivers.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.