ArticleProgress in community health partnerships : research, education, and action2020
Reaching Consensus on Principles of Stakeholder Engagement in Research.
Article in Progress in community health partnerships : research, education, and action, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
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Who cites it
30 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Racial and ethnic disparities in communication study enrollment for young people with cancer: A descriptive analysis of the literature.Patient education and counseling · 2022Pooled it
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- Overcoming barriers in myalgic encephalomyelitis/chronic fatigue syndrome research: the CureME participatory model.Frontiers in human neuroscience · 2026Article
- Illustrating Key Components to Co-Creation Through Preventive Care mHealth Messaging with Underserved Communities and Expert Partners.Journal of medical systems · 2025Article
- Measuring Research Engagement among Previously Incarcerated Persons and Other Carceral Stakeholders while Implementing Wastewater-based Surveillance for SARS-CoV-2 in Jails: A Mixed-Methods Study.Research square · 2025Article
- A Co-Produced Stakeholder Workshop to Identify Key Time Points and Targets for Life-Course Prevention of Multiple Long-Term Conditions.Health expectations : an international journal of public participation in health care and health policy · 2025Review
- Understanding Participant Perspectives Toward the Formation of a Participant Advisory Board Within the Reasons for Geographic and Racial Differences in Stroke Study: A National Qualitative Study.Journal of the American Heart Association · 2025Article
- Enhancing Patient Engagement in HTA: Using Consensus Research to Overcome PICO Scoping Challenges Under the EU HTAR.Journal of market access & health policy · 2025Article
- Implementing evidence into practice for the management of frozen shoulder: engaging with key stakeholders and evaluating barriers and facilitators using the Consolidated Framework for Implementation Research.Health research policy and systems · 2025Article
- Increasing the Uptake of Breast and Cervical Cancer Screening Via the MAwar Application: Stakeholder-Driven Web Application Development Study.JMIR formative research · 2025Article
- Childhood Cancer Survivorship Care in Limited Resource Settings: A Narrative Review and Strategies to Promote Global Health Equity.JCO global oncology · 2025Review
- Closing the gap between implementation science and policy in Nigeria: lessons from the Nigeria implementation science alliance using a nominal group technique.Frontiers in health services · 2025Article
- Guiding principles for accelerating change through health inequities research and practice: A modified Delphi consensus process.PloS one · 2025Article
- Using community engagement withContemporary clinical trials communications · 2024Article
- Practitioner perspectives on equitable implementation of evidence-based interventions for cancer prevention and control.Translational behavioral medicine · 2024Article
- Article
- Application of a Heuristic Framework for Multilevel Interventions to Eliminate the Impact of Unjust Social Processes and Other Harmful Social Determinants of Health.Prevention science : the official journal of the Society for Prevention Research · 2024Article
- Fostering citizen-engaged HIV implementation science.Journal of the International AIDS Society · 2024Article
- Organisational benefits of undertaking research in healthcare: an approach to uncover impact.BMC research notes · 2023Review
- Strategies for Improving Enrollment of Diverse Populations with a Focus on Lipid-Lowering Clinical Trials.Current cardiology reports · 2023Review
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
backgroundStakeholder-engaged research is an umbrella term for the types of research that have community, patient, and/or stakeholder engagement, feedback, and bidirectional communication as approaches used in the research process. The level of stakeholder engagement across studies can vary greatly, from minimal engagement to fully collaborative partnerships.
objectivesTo present the process of reaching consensus among stakeholder and academic experts on the stakeholder engagement principles (EPs) and to identify definitions for each principle.
methodsWe convened 19 national experts, 18 of whom remained engaged in a five-round Delphi process. The Delphi panel consisted of a broad range of stakeholders (e.g., patients, caregivers, advocacy groups, clinicians, researchers). We used web-based surveys for most rounds (1-3 and 5) and an in-person meeting for round 4. Panelists evaluated EP titles and definitions with a goal of reaching consensus (>80% agreement). Panelists' comments guided modifications, with greater weight given to non-academic stakeholder input.
conclusionsEP titles and definitions were modified over five Delphi rounds. The panel reached consensus on eight EPs (dropping four, modifying four, and adding one) and corresponding definitions. The Delphi process allowed for a stakeholder-engaged approach to methodological research. Stakeholder engagement in research is time consuming and requires greater effort but may yield a better, more relevant outcome than more traditional scientist-only processes. This stakeholder-engaged process of reaching consensus on EPs and definitions provides a key initial step for the content validation of a survey tool to examine the level of stakeholder engagement in research studies.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.