ArticleCardiology in the young2020
A transition clinic intervention to improve follow-up rates in adolescents and young adults with congenital heart disease.
Article in Cardiology in the young, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 3 syntheses or guidelines pooled it, 39 citations in OpenAlex.
- Multidisciplinary Approach for Adult Patients With Childhood-Onset Chronic Disease Focusing on Promoting Pediatric to Adult Healthcare Transition Interventions: An Updated Systematic Review.Frontiers in pediatrics · 2022Pooled it
- Discontinuation of follow-up care for young people with complex chronic conditions: conceptual definitions and operational components.BMC health services research · 2021Pooled it
- Discontinuity of Cardiac Follow-Up in Young People With Congenital Heart Disease Transitioning to Adulthood: A Systematic Review and Meta-Analysis.Journal of the American Heart Association · 2021Pooled it
- Transition of care for adolescents and young adults with Kawasaki disease: An international survey.International journal of cardiology. Congenital heart disease · 2026Article
- Digital Health Intervention to Promote Lifelong Specialized Care in Adults With Congenital Heart Disease: Theory-Driven Community Co-Designed Study.Journal of medical Internet research · 2026Article
- Feasibility of Repeated Patient-Reported Outcome Collection and Trial Design Implications for Structured Transition Care in Adolescents with Congenital Heart Disease: A Single-Center Pilot Randomized Controlled Study.Children (Basel, Switzerland) · 2026Article
- Bridging Pediatric to Adult Care: A Scoping Review on Transitional Care for Individuals with Congenital Heart Disease Using Data Mining Techniques to Identify Key Topics.Current cardiology reports · 2026Article
- Supporting the Journey: A Scoping Review of Healthcare Transition Programs for Adolescents with Congenital Heart Disease.Pediatric cardiology · 2026Article
- No patient left behind: Developing an interdisciplinary transition clinic for young adult patients with congenital heart disease.Health care transitions · 2026Article
- Transfer to Adult Care in Epilepsy: A Nationwide Population-Based Register Study.Neurology. Clinical practice · 2025Article
- Transition from pediatric to adult cardiology care in congenital heart disease: contemporary considerations.European journal of pediatrics · 2025Review
- Development and design of a Blueprint for structured transitional care in adolescents and young adults in the academic hospital setting.Health care transitions · 2025Article
- Referral Order Placement Decreases Time to Transfer to Adult Congenital Heart Disease Care.Pediatric cardiology · 2024Article
- Article
- Improving Transition of Care for Pediatric Patients With Chronic Kidney Disease: A Pilot Project.Cureus · 2024Article
- Long-term outcomes for pediatric heart transplant recipients transitioning to adult care teams.Clinical transplantation · 2024Article
- Examining the Real-Life Journey of Individuals and Families Affected by Single-Ventricle Congenital Heart Disease.Journal of the American Heart Association · 2023Article
- Validation of the Transition Readiness Assessment Questionnaire (TRAQ) 5.0 for use among youth in mental health services.Child: care, health and development · 2023Article
- Programmes to support paediatric to adult healthcare transitions for youth with complex care needs and their families: A scoping review.Child: care, health and development · 2022Article
- Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association.Journal of the American Heart Association · 2022Review
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
backgroundChildren with congenital heart disease (CHD) require lifelong cardiology follow-up. Many experience gaps in care around the age of transition to adult-oriented care with associated comorbidity. We describe the impact of a clinic-based intervention on follow-up rates in this high-risk population.
methodsPatients ≥11 years seen in a paediatric outpatient CHD Transition Clinic completed self-assessment questionnaires, underwent focused teaching, and were followed on a clinic registry with assessment of care continuation. The cohort "lost to follow-up" rate, defined as absence from care at least 6 months beyond the recommended timeframe, was compared with a control group. Secondary outcomes included questionnaire scores and adult cardiology referral trends.
resultsOver 26 months, 53 participants completed an initial Transition Clinic visit; 43% (23/53) underwent a second visit. Median participant age was 18.0 years (interquartile range 16.0, 22.0). The cohort's "lost to follow-up" rate was 7.3%, which was significantly lower than the control rate (25.9%, p < 0.01). Multivariable regression analyses demonstrated clinic participation as the only factor independently associated with follow-up rates (p = 0.048). Transition readiness was associated with older age (p = 0.01) but not sex, univentricular heart, interventional history, or surgical complexity. One-third of adult participants transferred to adult care.
conclusionsA CHD Transition Clinic intervention can improve follow-up rates in adolescents and young adults. Age is an important factor in transition readiness, and retention of adults in paediatric care appears multi-factorial. We postulate that serial assessments of self-management, focused education, and registry utilisation may improve patient outcomes by reducing lapses in care.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.