Evidence map›Paper›PMID 32269461›Full record

ArticleEthnicity & disease2020

Toward Reducing Health Information Inequities in the Caribbean: Our Experience Building a Participatory Health Informatics Project.

Karen Wang, Ian Hambleton, Erika Linnander, Luis Marenco, Saria Hassan, Mahima Kumara, Lyna E Fredericks, Saida Harrigan, Trevor A Hasse, Cynthia Brandt and 2 more

Abstract read
In one paragraph

Article in Ethnicity & disease, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. SHARE: An ethical framework for equitable data sharing in Caribbean health research.Revista panamericana de salud publica = Pan American journal of public health · 2024
    Article
  2. Embracing open data for Caribbean health.Revista panamericana de salud publica = Pan American journal of public health · 2024
    Article
  3. Caribbean data-sharing initiatives: activities of the Eastern Caribbean Health Outcomes Research Network.Revista panamericana de salud publica = Pan American journal of public health · 2024
    Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Karen WangEquity Research and Innovation Center, General Internal Medicine, Yale School of Medicine, New Haven, CT.
Ian HambletonGeorge Alleyne Chronic Disease Research Centre, Caribbean Institute for Health Research, The University of the West Indies, Cave Hill campus, Barbados.
Erika LinnanderGlobal Health Leadership Initiative, Yale School of Public Health, New Haven, CT.
Luis MarencoCenter for Medical Informatics, Yale School of Medicine, New Haven, CT.
Saria HassanEquity Research and Innovation Center, General Internal Medicine, Yale School of Medicine, New Haven, CT.
Mahima KumaraEquity Research and Innovation Center, General Internal Medicine, Yale School of Medicine, New Haven, CT.
Lyna E FredericksUS Virgin Islands Department of Health, St. Thomas, USVI.
Saida HarriganCommunity, New York, NY, USA.
Trevor A HasseHealthy Caribbean Coalition, Bridgetown, Barbados.
Cynthia BrandtCenter for Medical Informatics, Yale School of Medicine, New Haven, CT.
Marcella Nunez-SmithEquity Research and Innovation Center, General Internal Medicine, Yale School of Medicine, New Haven, CT.
ECHORN Writing Group

Funding

Yale Transdisciplinary Collaborative Center for Health Disparities Research (YALE-TCC)U54MD010711 · NIMHD · YALE UNIVERSITY · PI ADAMS, OSWALD PETER, MAHARAJ, ROHAN GAUTAMA · 2016 to 2021
$14.4M
NIMHD NIH HHS U54 MD010711
6 · The paper itself

Abstract

Precision medicine seeks to leverage technology to improve the health for all individuals. Successful health information systems rely fundamentally on the integration and sharing of data from a range of disparate sources. In many settings, basic infrastructure inequities exist that limit the usefulness of health information systems. We discuss the work of the Yale Transdisciplinary Collaborative Center for Health Disparities focused on Precision Medicine, which aims to improve the health of people in the Caribbean and Caribbean diaspora by leveraging precision medicine approaches. We describe a participatory informatics approach to sharing data as a potential mechanism to reducing inequities in the existing data infrastructure.

Indexed as

Caribbean RegionCultural CharacteristicsCultural CompetencyHealthcare DisparitiesHealth EducationHumansInformation DisseminationNative Hawaiian or Pacific IslanderPublic Health InformaticsSocioeconomic FactorsCaribbeanCommunity-Engaged Health InformaticsData SharingPrecision Medicine

Identifiers

PMID32269461
PMCPMC7138447

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.