ArticleBMJ open2020
Persistence of patient and family experiences of critical illness.
Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it, 20 citations in OpenAlex.
- Family Support Strategies During Intensive Care Unit: A Systematic Review.Inquiry : a journal of medical care organization, provision and financingPooled it
- Virtual reality for relaxation in intensive care unit patients: feasibility, acceptability and intervention adaptation.Pilot and feasibility studies · 2025Article
- [Challenges and perspectives of family support in the intensive care unit: focus on vulnerable relatives].Medizinische Klinik, Intensivmedizin und Notfallmedizin · 2025Review
- Patients' and family members' dyadic experience of post-operative delirium in the intensive care unit: A qualitative study.Nursing in critical care · 2025Article
- The needs and experiences of critically ill patients and family members in intensive care unit of a tertiary hospital in Malaysia: a qualitative study.BMC health services research · 2023Article
- Winners and Losers in Palliative Care Service Delivery: Time for a Public Health Approach to Palliative and End of Life Care.Healthcare (Basel, Switzerland) · 2021Article
- Palliative and End-of-Life Care Service Models: To What Extent Are Consumer Perspectives Considered?Healthcare (Basel, Switzerland) · 2021Review
Corrections and comments
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Authors and funding
15 authors at 3 institutions in 1 country.
Funding
Abstract
objectiveTo investigate: (1) patient and family experiences with healthcare and the intensive care unit (ICU); (2) experiences during their critical illness; (3) communication and decision making during critical illness; (4) feelings about the ICU experience; (5) impact of the critical illness on their lives; and (6) concerns about their future after the ICU.
designFour semistructured focus group interviews with former ICU patients and family members. SETTINGS: Multicultural community group and local hospitals containing medical/surgical ICUs.
participantsPatients and family who experienced a critical illness within the previous 10 years.
interventionsNone. MEASUREMENTS AND MAIN
resultsFour separate focus groups each lasting a maximum of 150 min and consisting of a total of 21 participants were held. Focus groups were conducted using a semistructured script including six topics relating to the experience of critical illness that facilitated deduction and the sorting of data by thematic analysis into five predominant themes. The five main themes that emerged from the data were: (1) personalised stories of the critical illness; (2) communication and shared decision making, (3) adjustment to life after critical illness, (4) trust towards clinical team and relevance of cultural beliefs and (5) end-of-life decision making. Across themes, we observed a misalignment between the medical system and patient and family values and priorities.
conclusionsThe experience of critical illness of a diverse group of patients and families can remain vivid for years after ICU discharge. The identified themes reflect the strength of memory of such pivotal experiences and the importance of a narrative around those experiences. Clinicians need to be aware of the lasting effects of critical illness has on patients and families.
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What OpenQuestion holds
Registered trials
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