Evidence map›Paper›PMID 32257413›Full record

ArticleJournal of clinical and translational science2020

An electronic health record-based strategy to recruit for a Patient Advisory Council for Research: Implications for inclusion.

Nassira Bougrab, Dadong Li, Howard Trachtman, Scott Sherman, Rachel Thornton, Aisha T Langford

Abstract read
In one paragraph

Article in Journal of clinical and translational science, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Nassira BougrabNYU Clinical and Translational Science Institute Recruitment and Retention Unit, NYU Langone Health, New York, NY, USA.ORCID https://orcid.org/0000-0002-5208-9786
Dadong LiClinic Informatics, Regeneron Pharmaceutics, Inc., Tarrytown, NY, USA.
Howard TrachtmanNYU Clinical and Translational Science Institute Recruitment and Retention Unit, NYU Langone Health, New York, NY, USA.
Scott ShermanNYU Clinical and Translational Science Institute Recruitment and Retention Unit, NYU Langone Health, New York, NY, USA.
Rachel ThorntonNYU Clinical and Translational Science Institute Recruitment and Retention Unit, NYU Langone Health, New York, NY, USA.
Aisha T LangfordNYU Clinical and Translational Science Institute Recruitment and Retention Unit, NYU Langone Health, New York, NY, USA.

Funding

Project-005UL1TR001445 · NCATS · NEW YORK UNIVERSITY SCHOOL OF MEDICINE · PI BREDELLA, MIRIAM ANTOINETTE, HOCHMAN, JUDITH S · 2015 to 2025
$103.5M
NCATS NIH HHS UL1 TR001445
6 · The paper itself

Abstract

In 2017, the NYU Clinical and Translational Science Institute's Recruitment and Retention Unit created a Patient Advisory Council for Research (PACR) to provide feedback on clinical trials and health research studies. We collaborated with our clinical research informatics team to generate a random sample of patients, based on the International Classification of Diseases, Tenth Revision codes and demographic factors, for invitation via the patient portal. This approach yielded in a group that was diverse with regard to age, race/ethnicity, sex, and health conditions. This report highlights the benefits and limitations of using an electronic health record-based strategy to identify and recruit members for a PACR.

Indexed as

electronic health recordsInternational Classification of Diseasesmedical informaticsPatient participation

Identifiers

PMID32257413
PMCPMC7103472

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.