ArticleJournal of Parkinson's disease2020
Innovative Recruitment Strategies to Increase Diversity of Participation in Parkinson's Disease Research: The Fox Insight Cohort Experience.
Article in Journal of Parkinson's disease, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers.
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Who cites it
34 citing papers in PubMed, 58 citations in OpenAlex.
- Success and cost-effectiveness of strategies to recruit older adults to a behavioral intervention research study.Contemporary clinical trials · 2025Trial
- Digital and traditional recruitment strategies and participation patterns in the multicenter Healthy Brain Ageing study.Frontiers in digital health · 2026Article
- Participation in U.S.-Based ALS Clinical Trials by Sex and Race.Muscle & nerve · 2026Article
- Locally adapting digital health technologies to address the global challenge of Parkinson's disease.Equity neuroscience · 2025Article
- Sex and gender differences in Lewy body dementia: a narrative review.Equity neuroscience · 2025Article
- Should old acquaintance be forgot: A call for recognition and inclusion of advanced Parkinson's disease patients & care partners in evolving research models.Parkinsonism & related disorders · 2025Article
- Improving recruitment and retention of people with Parkinson's disease to clinical studies: A scoping review.Journal of Parkinson's disease · 2025Article
- A model to address healthcare gaps and poor research participation in Hispanic patients with Parkinson's disease.Frontiers in aging neuroscience · 2025Article
- Community engagement studios to improve racial diversity and health equity in Parkinson's.Journal of clinical and translational science · 2025Article
- The Black and African American Connections to Parkinson's Disease (BLAAC PD) study protocol.BMC neurology · 2024Article
- Sexual Orientation, Gender Identity, and Experiences During, Awareness of, and Attitudes Toward Research for People With Parkinson Disease.Neurology. Clinical practice · 2024Article
- Assessing the validity of a Parkinson's care evaluation: the PRIME-NL study.European journal of epidemiology · 2024Article
- A person-centered approach to characterizing longitudinal ambulatory impairment in Parkinson's disease.Scientific reports · 2024Article
- Patient-centered development of clinical outcome assessments in early Parkinson disease: key priorities and advances.NPJ Parkinson's disease · 2024Article
- Seven Strategies to Integrate Equity within Translational Research in Neurology.Annals of neurology · 2024Review
- In Their Own Words: Fears Expressed by People with Parkinson's Disease in an Online Symptom Database.Journal of Parkinson's disease · 2024Article
- Real-World Experiences of Parkinson's Disease OFF Time and Role of Demographics.Journal of patient-centered research and reviews · 2024Article
- Online cognitive testing in Parkinson's disease: advantages and challenges.Frontiers in neurology · 2024Review
- Article
- Adjusting for Underrepresentation Reveals Widespread Underestimation of Parkinson's Disease Symptom Burden.Movement disorders : official journal of the Movement Disorder Society · 2023Article
Corrections and comments
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Authors and funding
18 authors at 9 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundClinical research in Parkinson's disease (PD) faces practical and ethical challenges due to two interrelated problems: participant under-recruitment and lack of diversity. Fox Insight (FI) is a web-based longitudinal study collecting patient-reported outcomes and genetic data worldwide to inform therapeutic studies. FI's online platform provides an opportunity to evaluate online strategies for recruiting large, diverse research cohorts.
objectiveThis project aimed to determine 1) whether FI's digital marketing was associated with increased enrollment overall and from under-represented patient groups, compared to traditional recruitment methods; 2) the clinical and demographic characteristics of samples recruited online, and 3) the cost of this online recruitment.
methodFI recruitment during a 6-week baseline period without digital promotion was compared to recruitment during several periods of digital outreach. Separate online recruiting intervals included general online study promotion and unique Facebook and Google ad campaigns targeting under-represented subgroups: early PD, late/advanced PD, and residents of underrepresented/rural geographic areas.
resultsEarly PD, late PD, and geotargeting campaigns enrolled more individuals in their respective cohorts compared to baseline. All online campaigns also yielded greater total FI enrollment, attracting more participants who were non-White, Hispanic, older, female, and had lower educational attainment and income, and more medical comorbidities. Cost per new participant ranged from $21 (Facebook) to $108 (Google).
conclusionDigital marketing may allow researchers to increase, accelerate, and diversify recruitment for PD clinical studies, by tailoring digital ads to target PD cohort characteristics.
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