ArticleProgress in transplantation (Aliso Viejo, Calif.)2020
Recommendations for Systematizing Transplant Education Within a Care Delivery System for Patients With Chronic Kidney Disease Stages 3 to 5.
Article in Progress in transplantation (Aliso Viejo, Calif.), 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
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Who cites it
5 citing papers in PubMed.
- Informing transplant candidate and donor education in living kidney donation: mapping educational needs through a rapid review.BMC nephrology · 2025Review
- Early Steps of the Kidney Transplant Process: What Are the Experiences of Dialysis Social Workers?Clinical transplantation · 2025Article
- Understanding people's decisions when choosing or declining a kidney transplant: a qualitative evidence synthesis.BMJ open · 2023Article
- Findings of living donation experiences shared on a digital storytelling platform: A thematic analysis.PEC innovation · 2022Article
- A scoping review of inequities in access to organ transplant in the United States.International journal for equity in health · 2022Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
contextEarly tailored transplant education could help patients make informed transplant choices.
objectiveWe interviewed 40 patients with chronic kidney disease (CKD) stages 3 to 5, 13 support persons, and 10 providers at Kaiser Permanente Southern California to understand: (1) barriers to transplant education and (2) transplant educational preferences and recommendations based on CKD stage and primary language spoken.
designA grounded theory analysis identified central themes related to transplant education barriers, preferences, and recommendations.
resultsBarriers included confusion about diagnosis and when transplant may be necessary, concerns about transplant risks, families' lack of transplant knowledge, financial burdens, transportation and scheduling, and the emotional overload of chronic illness. Hispanic and Spanish-speaking participants reported difficulty in understanding transplant education and medical mistrust. Recommendations included providing general education, earlier introduction to transplant, wait-listing information, transplant education for support persons, living donation education for patients and potential donors, opportunities to meet living donors and kidney recipients, information on the benefits of transplant, recovery, and available financial resources, flexible class scheduling, online and print resources, and more provider follow-up. Spanish-speaking and Hispanic participants recommended using bilingual educators, print, video, and online resources in Spanish, and culturally responsive education. Patients with CKD stages 3 to 4 wanted information on slowing disease progression and avoiding transplant.
conclusionIncreasing access to culturally responsive transplant education in multiple languages, pairing appropriate content to the disease stage, and increasing system-wide follow-up as the disease progresses might help patients make more informed choices about transplant.
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