ArticleJournal of medical Internet research2020
Patients' Willingness to Share Information in Online Patient Communities: Questionnaire Study.
Article in Journal of medical Internet research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- Consent mechanisms and default effects in health information exchange in Japan.Frontiers in digital health · 2025Article
- A study on user willingness to participate in an adverse drug event information sharing system.BMC public health · 2024Article
- Factors Influencing the Sharing of Personal Health Data Based on the Integrated Theory of Privacy Calculus and Theory of Planned Behaviors Framework: Results of a Cross-Sectional Study of Chinese Patients in the Yangtze River Delta.Journal of medical Internet research · 2023Observational
- An Assessment of Perspectives and Concerns Among Research Participants of Childbearing Age Regarding the Health-Relatedness of Data, Online Data Privacy, and Donating Data to Researchers: Survey Study.Journal of medical Internet research · 2023Article
- A survey of United States adult privacy perspectives and willingness to share real-world data.Journal of clinical and translational science · 2023Article
- A Survey of Research Participants' Privacy-Related Experiences and Willingness to Share Real-World Data with Researchers.Journal of personalized medicine · 2022Article
- Internal or External Word-of-Mouth (WOM), Why Do Patients Choose Doctors on Online Medical Services (OMSs) Single Platform in China?International journal of environmental research and public health · 2022Article
- Social Q&A communities: A multi-factor study of the influence of users' knowledge sharing behaviors.Frontiers in psychology · 2022Article
- Users' Willingness to Share Health Information in a Social Question-and-Answer Community: Cross-sectional Survey in China.JMIR medical informatics · 2021Article
- Privacy Concerns About Health Information Disclosure in Mobile Health: Questionnaire Study Investigating the Moderation Effect of Social Support.JMIR mHealth and uHealth · 2021Article
- The Influence of Doctors' Online Reputation on the Sharing of Outpatient Experiences: Empirical Study.Journal of medical Internet research · 2020Article
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundOnline patient communities provide new channels for users to access and share medical information. In-depth study of users' willingness to share information in online patient communities is of great significance for improving the level of information sharing among the patient community and the long-term development of communities.
objectiveThe aim of this study was to build a model of factors affecting patients' willingness to share medical information from the perspective of both positive and negative utilities. Specifically, we aimed to determine the influence of online information support and privacy concerns, as well as the moderating effect of disease severity and information sensitivity of different patients on their willingness to share.
methodsData from 490 users with experience in online patient communities were collected through a questionnaire survey, and structural equations were applied to empirically verify the model hypotheses.
resultsPrivacy concerns negatively affected the patients' willingness to share information (P<.001), whereas online information support positively affected patients' willingness to share information (P<.001), and information sensitivity negatively moderated the impact of online information support on sharing willingness (P=.01). Disease severity positively moderated the impact of privacy concerns on sharing willingness (P=.05). However, the hypotheses that information sensitivity is a negative moderator and disease severity is a positive moderator of the impact of privacy concerns on sharing willingness could not be supported.
conclusionsTo improve the level of user information sharing, the online patient community should design a safe user registration process, ensure the confidentiality of information, reduce the privacy concerns of users, and accurately identify the information needs of patients to provide personalized support services.
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