Evidence map›Paper›PMID 32233702›Full record

ArticleDisability and rehabilitation2021

Profile of social self-management practices in daily life with Parkinson's disease is associated with symptom severity and health quality of life.

Linda Tickle-Degnen, Michael T Stevenson, Sarah D Gunnery, Marie Saint-Hilaire, Cathi A Thomas, Linda Sprague Martinez, Barbara Habermann, Elena N Naumova

Abstract read
In one paragraph

Article in Disability and rehabilitation, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Trial
  2. Review
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Linda Tickle-DegnenDepartment of Occupational Therapy, School of Arts & Sciences, Tufts University, Medford, MA, USA.ORCID 0000-0002-1980-9294
Michael T StevensonDepartment of Occupational Therapy, School of Arts & Sciences, Tufts University, Medford, MA, USA.ORCID 0000-0002-9314-8244
Sarah D GunneryDepartment of Psychology, New England College, Henniker, NH, USA.ORCID 0000-0002-5209-5377
Marie Saint-HilaireDepartment of Neurology, Boston University Medical Center, Boston, MA, USA.ORCID 0000-0002-2355-5979
Cathi A ThomasDepartment of Neurology, Boston University Medical Center, Boston, MA, USA.ORCID 0000-0002-4456-0937
Linda Sprague MartinezSchool of Social Work, Boston University, Boston, MA, USA.ORCID 0000-0002-5070-7640
Barbara HabermannSchool of Nursing, College of Health Sciences, University of Delaware, Newark, DE, USA.ORCID 0000-0003-4911-5557
Elena N NaumovaThe Gerald J. and Dorothy R. Friedman School of Nutrition Science and Policy, Tufts University, Boston, MA, USA.ORCID 0000-0002-9562-4734

Funding

Tufts Clinical and Translational Science Institute (Pilot Supplement)UL1TR002544 · NCATS · TUFTS UNIVERSITY BOSTON · PI SELKER, HARRY P. · 2018 to 2022
$50.2M
Emergence and evolution of social self-management of Parkinsons diseaseR01NR013522 · NINR · TUFTS UNIVERSITY MEDFORD · PI TICKLE-DEGNEN, LINDA S · 2013 to 2017
$2.2M
NCATS NIH HHS UL1 TR002544NINR NIH HHS R01 NR013522
6 · The paper itself

Abstract

purposeSocial participation is a key determinant of healthy aging, yet little is known about how people with Parkinson's disease manage social living. This study describes individual differences in social self-management practices and their association with symptom severity and health quality of life.

methodsPeople with Parkinson's disease (

resultsParticipants clustered into one of seven groups according to different combinations of three practices:

conclusionFindings provide insight into similarity and variation in how people with Parkinson's disease engage with social self-management resources and point to person-centered interventions.Implications for RehabilitationSocial self-management is a biopsychosocial construct to identify and describe self-care practices that engage one's social resources for managing healthful daily living.People with Parkinson's disease vary in their profiles of engaging in social self-management practices in daily living, and this variability relates to severity of symptoms and health quality of life.Learning how to identify health-centered social self-management practices may help people with Parkinson's disease to focus on the healthfulness of their own practices.Learning how to strategically engage one's social resources as part of self-care may help people with Parkinson's disease to master managing their health and well-being in daily life.

Indexed as

Parkinson DiseaseSelf-ManagementActivities of Daily LivingHumansQuality of LifeSelf CareSocial Participationbiopsychosocialeveryday livingperson-centeredSelf-managementsocial ecologysocial participation

Identifiers

PMID32233702
PMCPMC7529710

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.