ArticleJournal of the American Medical Informatics Association : JAMIA2020
Balancing health privacy, health information exchange, and research in the context of the COVID-19 pandemic.
Article in Journal of the American Medical Informatics Association : JAMIA, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 42 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
42 citing papers in PubMed, 3 syntheses or guidelines pooled it, 116 citations in OpenAlex.
- Measuring the willingness to share personal health information: a systematic review.Frontiers in public health · 2023Pooled it
- Transforming Health Data to Actionable Information: Recent Progress and Future Opportunities in Health Information Exchange.Yearbook of medical informatics · 2022Pooled it
- A Comprehensive Review of Artificial Intelligence in Prevention and Treatment of COVID-19 Pandemic.Frontiers in genetics · 2022Pooled it
- Outpatient discharge management model: a strategy to promote continuity of care.Revista brasileira de enfermagem · 2026Article
- Article
- Social determinants of health predict readmission following COVID-19 hospitalization: a health information exchange-based retrospective cohort study.Frontiers in public health · 2024Article
- Impact of the COVID-19 Pandemic on Mental Health and Lifestyle in Thai Occupational Therapy Students: A Mixed Method Study.European journal of investigation in health, psychology and education · 2022Article
- Telemedicine across the continuum of neonatal-perinatal care.Seminars in fetal & neonatal medicine · 2022Review
- Moderate support for the use of digital tracking to support climate-mitigation strategies.One earth (Cambridge, Mass.) · 2022Article
- Standardizing, harmonizing, and protecting data collection to broaden the impact of COVID-19 research: the rapid acceleration of diagnostics-underserved populations (RADx-UP) initiative.Journal of the American Medical Informatics Association : JAMIA · 2022Review
- Shared Access to Patient Portals for Older Adults: Implications for Privacy and Digital Health Equity.JMIR aging · 2022Article
- The Rapid Development of Virtual Care Tools in Response to COVID-19: Case Studies in Three Australian Health Services.JMIR formative research · 2022Article
- Blockchain Framework for Secure COVID-19 Pandemic Data Handling and Protection.Computational intelligence and neuroscience · 2022Article
- Jordanian views regarding sharing of medical data for research: A cross-sectional study during COVID-19 pandemic.PloS one · 2022Observational
- Achieving data privacy for decision support systems in times of massive data sharing.Cluster computing · 2022Article
- Pediatric Telehealth in the COVID-19 Pandemic Era and Beyond.Pediatrics · 2021Review
- Interorganizational Knowledge Sharing to Establish Digital Health Learning Ecosystems: Qualitative Evaluation of a National Digital Health Transformation Program in England.Journal of medical Internet research · 2021Article
- The Clinical Information Systems Response to the COVID-19 Pandemic.Yearbook of medical informatics · 2021Review
- Privacy-Oriented Technique for COVID-19 Contact Tracing (PROTECT) Using Homomorphic Encryption: Design and Development Study.Journal of medical Internet research · 2021Article
- Overcoming gaps: regional collaborative to optimize capacity management and predict length of stay of patients admitted with COVID-19.JAMIA open · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 2 institutions in 1 country.
Funding
Abstract
The novel coronavirus disease 2019 infection poses serious challenges to the healthcare system that are being addressed through the creation of new unique and advanced systems of care with disjointed care processes (eg, telehealth screening, drive-through specimen collection, remote testing, telehealth management). However, our current regulations on the flows of information for clinical care and research are antiquated and often conflict at the state and federal levels. We discuss proposed changes to privacy regulations such as the Health Insurance Portability and Accountability Act designed to let health information seamlessly and frictionlessly flow among the health entities that need to collaborate on treatment of patients and, also, allow it to flow to researchers trying to understand how to limit its impacts.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.