Evidence map›Paper›PMID 32229729›Full record

ArticleHormone research in paediatrics2019

Concerns and Expectations of Parents Seeking Subspecialist Care for Their Child's Short Stature.

Talia Hitt, Kenneth R Ginsburg, Pamela Cousounis, Terri H Lipman, Andrew J Cucchiara, Virginia A Stallings, Adda Grimberg

Open access · greenAbstract read
In one paragraph

Article in Hormone research in paediatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed, 1 pooled it
0.8field-weighted citation impact, top 24% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

17 citing papers in PubMed, 1 synthesis or guideline pooled it, 27 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Correlates of youth involvement in decision making about growth hormone treatment.Families, systems & health : the journal of collaborative family healthcare · 2025
    Article
  4. Article
  5. Article
  6. Growth Hormone Treatment for Non-GHD Disorders: Excitement Tempered by Biology.The Journal of clinical endocrinology and metabolism · 2024
    Review
  7. Article
  8. Youth and Parent Perceptions of Youth Decision-Making Roles Regarding Evaluation for Short Stature.Children's health care : journal of the Association for the Care of Children's Health · 2024
    Article
  9. Article
  10. Views on Short Stature of Female vs Male Endocrine Pediatric Patients Undergoing Provocative Growth Hormone Testing and Their Parents.Endocrine practice : official journal of the American College of Endocrinology and the American Association of Clinical Endocrinologists · 2023
    Article
  11. Article
  12. Inequalities in the assessment of childhood short stature.The British journal of general practice : the journal of the Royal College of General Practitioners · 2023
    Article
  13. Article
  14. Article
  15. Review
  16. Article
  17. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 2 institutions in 1 country.

Talia HittDivision of Endocrinology and Diabetes, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA, hittt@email.chop.edu.
Kenneth R GinsburgPerelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Pamela CousounisDivision of Endocrinology and Diabetes, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
Terri H LipmanDivision of Endocrinology and Diabetes, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
Andrew J CucchiaraPerelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Virginia A StallingsPerelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Adda GrimbergDivision of Endocrinology and Diabetes, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
University of Pennsylvania · USChildren's Hospital of Philadelphia · US

Funding

Phenotypic Diversity in COVID-19UL1TR001878 · NCATS · UNIVERSITY OF PENNSYLVANIA · PI FITZGERALD, GARRET A · 2016 to 2025
$102.4M
Overcoming Disparities in Growth EvaluationsR01HD057037 · NICHD · CHILDREN'S HOSP OF PHILADELPHIA · PI GRIMBERG, ADDA · 2009 to 2012
$2.1M
NCATS NIH HHS UL1 TR001878NICHD NIH HHS R01 HD057037
6 · The paper itself

Abstract

introductionParents (PP) of children in primary care clinics previously reported factors influencing their height-related medical decision making. However, patients seeking height-related care in endocrine subspecialty clinics and their parents (EP) differ demographically from the general population.

objectiveTo determine EP height-related medical concerns and expectations, and to compare between EP and PP.

methodsEP completed a survey assessing their concerns in seeking medical care for their child's height with identical questions previously asked of PP and two additional questions about growth hormone (GH) treatment.

resultsA greater proportion of the 166 EP (80% response rate) than the 1,820 PP (83% response rate) previously surveyed was Caucasian (75% EP, 41% PP) and privately insured (80% EP, 58% PP). Both groups rated treatment efficacy and risks most as having a bigor extreme impact on decision making (65% EP, 58% PP). The second most rated concern for EP was comparison of child's height to peers or growth chart (60% EP, 32% PP) versus child's health for PP (54% EP, 56% PP). Of the 166 EP surveyed, 76% rated GH treatment as potentially improving quality of life (QoL), with 88% reporting a minimum 3-inch height increase as necessary to improve QoL.

conclusionsHeight comparisons were more likely to impact EP than PP in seeking height-related medical care for their children. EP had high expectations of QoL improvement with GH treatment, which are unlikely to be met with treatment of idiopathic short stature. Thus, clinicians should be prepared to support families in other ways that promote positive development in children with short stature.

Indexed as

Body HeightHealth BehaviorParentsQuality of LifeAdolescentAdultChildFemaleGrowth DisordersHumansMaleGrowth hormoneHeightMedical decision makingParentPediatric endocrinologyPediatricsPositive youth developmentQuality of life

Identifiers

PMID32229729
PMCPMC7196322
OpenAlexW3013657953

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.