Evidence map›Paper›PMID 32228216›Full record

SynthesisPalliative medicine2020

A mixed-methods systematic review and meta-analysis of barriers and facilitators to paediatric symptom management at end of life.

Katie Greenfield, Simone Holley, Daniel E Schoth, Emily Harrop, Richard F Howard, Julie Bayliss, Lynda Brook, Satbir S Jassal, Margaret Johnson, Ian Wong and 1 more

Abstract readMeta-AnalysisSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in Palliative medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. Article
  5. Article
  6. Article
  7. Review
  8. Article
  9. Article
  10. End-of-Life Care Education as Blended Learning Approach for General Practitioners: a Scoping Review.Journal of cancer education : the official journal of the American Association for Cancer Education · 2023
    Article
  11. Review
  12. Article
  13. Review
  14. Review
  15. Current Grief Support in Pediatric Palliative Care.Children (Basel, Switzerland) · 2021
    Review
  16. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Katie GreenfieldSchool of Psychology, University of Southampton, Southampton, UK.
Simone HolleySchool of Psychology, University of Southampton, Southampton, UK.
Daniel E SchothSchool of Psychology, University of Southampton, Southampton, UK.
Emily HarropHelen & Douglas House Hospices, Oxford, UK.
Richard F HowardDepartment of Anaesthesia and Pain Medicine, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
Julie BaylissThe Louis Dundas Centre, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
Lynda BrookAlder Hey Children's Hospital, Liverpool, UK.
Satbir S JassalRainbows Hospice, Loughborough, UK.
Margaret JohnsonPatient & Public Representative, Cambridge, UK.
Ian WongUCL School of Pharmacy, London, UK.
Christina LiossiSchool of Psychology, University of Southampton, Southampton, UK.ORCID 0000-0003-0627-6377

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundSymptom management for infants, children and young people at end of life is complex and challenging due to the range of conditions and differing care needs of individuals of different ages. A greater understanding of these challenges could inform the development of effective interventions.

aimTo investigate the barriers and facilitators experienced by patients, carers and healthcare professionals managing symptoms in infants, children and young people at end of life.

designA mixed-methods systematic review and meta-analysis was undertaken (PROSPERO ID: CRD42019124797). DATA SOURCES: The Cochrane Library, PROSPERO, CINAHL, MEDLINE, PsycINFO, Web of Science Core Collection, ProQuest Dissertations & Theses Database, Evidence Search and OpenGrey were electronically searched from the inception of each database for qualitative, quantitative or mixed-methods studies that included data from patients, carers or healthcare professionals referring to barriers or facilitators to paediatric end-of-life symptom management. Studies underwent data extraction, quality appraisal, narrative thematic synthesis and meta-analysis.

resultsA total of 64 studies were included (32 quantitative, 18 qualitative and 14 mixed-methods) of medium-low quality. Themes were generated encompassing barriers/facilitators experienced by carers (treatment efficacy, treatment side effects, healthcare professionals' attitudes, hospice care, home care, families' symptom management strategies) and healthcare professionals (medicine access, treatment efficacy, healthcare professionals' demographics, treatment side effects, specialist support, healthcare professionals' training, health services delivery, home care). Only one study included patients' views.

conclusionThere is a need for effective communication between healthcare professionals and families, more training for healthcare professionals, improved symptom management planning including anticipatory prescribing, and urgent attention paid to the patients' perspective.

Indexed as

Hospice CarePalliative CarePatient Care ManagementAdolescentChildDeathHealth PersonnelHumansInfantQualitative ResearchcaregiversChildmeta-analysispaediatricspain managementpalliative caresystematic reviewterminal care

Identifiers

PMID32228216
PMCPMC7521017

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.