Evidence map›Paper›PMID 32219517›Full record

ArticleJournal of cancer research and clinical oncology2020

Use of GoFundMe

Sikai Song, Andrew J Cohen, Hansen Lui, Nnenaya A Mmonu, Hartley Brody, German Patino, Aron Liaw, Christi Butler, Kirkpatrick B Fergus, Jorge Mena and 4 more

Open access · greenAbstract read
In one paragraph

Article in Journal of cancer research and clinical oncology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed
6.7field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

20 citing papers in PubMed, 33 citations in OpenAlex.

  1. Article
  2. GoFundMe®: Crowdfunding Among Young Adult Patients With Cancer.Clinical journal of oncology nursing · 2025
    Article
  3. Insights on Improving Health Insurance Literacy in Diabetes.The Journal of clinical endocrinology and metabolism · 2025
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  10. Review
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  14. Article
  15. Article
  16. Article
  17. Article
  18. Complementary and Alternative Medicine Use in Hospitalized Cancer Patients-Study from Silesia, Poland.International journal of environmental research and public health · 2022
    Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 3 institutions in 2 countries.

Sikai SongDepartment of Urology, University of California, San Francisco, San Francisco, CA, USA.
Andrew J CohenJames Buchanan Brady Urological Institute, Johns Hopkins School of Medicine, Baltimore, MD, USA.
Hansen LuiDepartment of Urology, University of California, San Francisco, San Francisco, CA, USA.
Nnenaya A MmonuDepartment of Urology, University of California, San Francisco, San Francisco, CA, USA.
Hartley BrodyJames Buchanan Brady Urological Institute, Johns Hopkins School of Medicine, Baltimore, MD, USA.
German PatinoDepartment of Urology, University of California, San Francisco, San Francisco, CA, USA.
Aron LiawDepartment of Urology, University of California, San Francisco, San Francisco, CA, USA.
Christi ButlerDepartment of Urology, University of California, San Francisco, San Francisco, CA, USA.
Kirkpatrick B FergusDepartment of Urology, University of California, San Francisco, San Francisco, CA, USA.
Jorge MenaDepartment of Urology, University of California, San Francisco, San Francisco, CA, USA.
Austin LeeDepartment of Urology, University of California, San Francisco, San Francisco, CA, USA.
Jeremy WeiserDepartment of Urology, University of California, San Francisco, San Francisco, CA, USA.
Kelly JohnsonDepartment of Urology, University of California, San Francisco, San Francisco, CA, USA.
Benjamin N BreyerDepartment of Urology, University of California, San Francisco, San Francisco, CA, USA. Benjamin.Breyer@ucsf.edu.
University of California, San Francisco · USJohns Hopkins Medicine · USHospital Universitario San Ignacio · CO

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeComplementary and alternative medicine (CAM) use is common amongst cancer patients. However, there is growing concern about its safety and efficacy. Online crowdfunding campaigns represent a unique avenue to understand the cancer patient's perspective for using CAM or declining conventional cancer therapy (CCT).

methodsFive hundred GoFundMe campaigns from 2012 to 2019 detailing financial need for cancer treatment were randomly selected and reviewed for endorsement of CAM use, reasons for using CAM, and reasons for declining CCT. Descriptive statistics were used to compare patient and campaign characteristics between 250 CAM users and 250 non-CAM users.

resultsCompared to non-CAM users, CAM users were more likely to be female (70% vs. 54%, p < 0.01), to report more stage IV cancer (54% vs. 12%, p < 0.01), and to have a history of delayed, missed, or misdiagnosis (10% vs. 4%, p < 0.01). Reasons for using CAM include endorsing curative/therapeutic effects 212 (85%), pain/stress reduction 137 (55%), and dissatisfaction with current or past medical treatment options 105 (42%). 87 (35%) CAM users that declined CCT reported that they wanted to try to fight off cancer using CAM first 57 (61%), that CCT was too "toxic" to the body 39 (42%), and cancer was already too advanced, so that CCT would be futile or too aggressive 25 (27%).

conclusionCancer patients on GoFundMe using CAM highly value quality of life, comfort, and autonomy. Physicians should educate themselves on CAM to set realistic expectations and provide comprehensive counseling of the risks and benefits of CAM usage to patients who choose to use CAM to either augment or completely replace CCT.

Indexed as

Complementary TherapiesSearch EngineDatabases, FactualHealth PromotionHumansMotivationNeoplasmsNeoplasm StagingWeb BrowserCancer treatmentComplementary and alternative medicineCrowdfundingPatient perspectiveSocial media

Identifiers

PMID32219517
PMCPMC11804722
OpenAlexW3013569251

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.