ArticleSpinal cord series and cases2020
The data set development for the National Spinal Cord Injury Registry of Iran (NSCIR-IR): progress toward improving the quality of care.
Article in Spinal cord series and cases, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed, 20 citations in OpenAlex.
- Data Set Instrument for Epidemiologic Studies of Spinal Cord Injury: Traumatic and Non-traumatic.Neurology and therapy · 2026Article
- Pre-Hospital and Post-Hospital Quality of Care in Traumatic Spinal Column and Cord Injuries in Iran.Global spine journal · 2025Article
- Improving quality of care in traumatic spinal column/spinal cord injuries (TSC/SCI) in Iran: a policy brief.Spinal cord series and cases · 2024Article
- Establishing an Australian pediatric spinal cord disorder register using consumer, health professional, and researcher perspectives.The journal of spinal cord medicine · 2024Article
- Post-discharge follow-up of patients with spine trauma in the National Spinal Cord Injury Registry of Iran during the COVID-19 pandemic: Challenges and lessons learned.Chinese journal of traumatology = Zhonghua chuang shang za zhi · 2024Observational
- Designing a minimum data set for the information management system (registry) of spinal canal stenosis: An applied-descriptive study.Health science reports · 2023Article
- The international spinal cord injury pain basic data set (version 3.0).Spinal cord · 2023Article
- Dos and don'ts in designing a computerized oral and lip squamous cell cancer registry.BMC health services research · 2023Article
- Development and evaluation of a customized checklist to assess the quality control of disease registry systems of Tehran, the capital of Iran in 2021.BMC health services research · 2023Article
- Posttraumatic ascending myelopathy after spinal cord injury in a young man: A case report.Clinical case reports · 2022Article
- The need for an Australasian burns critical care standardised data collection tool.Critical care and resuscitation : journal of the Australasian Academy of Critical Care Medicine · 2021Article
- An evaluation of the representativeness of a national spinal cord injury registry: a population-based cohort study.Spinal cord · 2021Article
Corrections and comments
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Authors and funding
27 authors at 11 institutions in 4 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
STUDY
designDescriptive study.
objectivesThe aim of this manuscript is to describe the development process of the data set for the National Spinal Cord Injury Registry of Iran (NSCIR-IR).
settingSCI community in Iran.
methodsThe NSCIR-IR data set was developed in 8 months, from March 2015 to October 2015. An expert panel of 14 members was formed. After a review of data sets of similar registries in developed countries, the selection and modification of the basic framework were performed over 16 meetings, based on the objectives and feasibility of the registry.
resultsThe final version of the data set was composed of 376 data elements including sociodemographic, hospital admission, injury incidence, prehospital procedures, emergency department visit, medical history, vertebral injury, spinal cord injury details, interventions, complications, and discharge data. It also includes 163 components of the International Standards for the Neurologic Classification of Spinal Cord Injury (ISNCSCI) and 65 data elements related to quality of life, pressure ulcers, pain, and spasticity.
conclusionThe NSCIR-IR data set was developed in order to meet the quality improvement objectives of the registry. The process was centered around choosing the data elements assessing care provided to individuals in the acute and chronic phases of SCI in hospital settings. The International Spinal Cord Injury Data Set was selected as a basic framework, helped by comparison with data from other countries. Expert panel modifications facilitated the implementation of the registry process with the current clinical workflow in hospitals.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.