ArticleBMJ open quality2020
Measure what we want: a taxonomy of short generic person-reported outcome and experience measures (PROMs and PREMs).
Article in BMJ open quality, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
29 citing papers in PubMed, 1 synthesis or guideline pooled it, 58 citations in OpenAlex.
- Patient-reported outcome measures (PROMs) after laparoscopic cholecystectomy: systematic review.BJS open · 2022Pooled it
- Article
- Exploring the response shift effects on patient-reported outcomes among postoperative bladder cancer patients: a qualitative study in China.BMC urology · 2026Article
- Mapping methods and tools for measuring patient experience in oncology settings: a scoping review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Global scoping review of key domains of patient-reported experience of care measures across life stages and healthcare technical areas.BMJ open · 2026Article
- Article
- [Person-centered wound care : Legitimation and theoretical concept].Zeitschrift fur Gerontologie und Geriatrie · 2025Article
- Optimal Implementation of Antimicrobial Stewardship in General Practice: protocol for a feasibility study and evaluation of a digital AMS Toolbox.Pilot and feasibility studies · 2025Article
- Patient experience of postoperative pain: a paradigm shift to a holistic approach.British journal of anaesthesia · 2025Article
- Time is now to consider how we evaluate person-centred care-the role of patient-reported outcomes.Frontiers in health services · 2025Article
- Incorporating patient-reported outcome measures into routine paediatric pharmacovigilance: opportunities for safety monitoring with practical use scenarios from paediatric oncology.Frontiers in pharmacology · 2025Review
- How patient-reported outcomes and experience measures (PROMs and PREMs) are implemented in healthcare professional and patient organizations? An environmental scan.Journal of patient-reported outcomes · 2024Article
- Factors Affecting Family Caregivers' Satisfaction During Virtual Care Visits.Studies in health technology and informatics · 2024Article
- Patient-reported experience measures (PREMs) in outpatient psychiatry - is there an association to perceived discrimination and devaluation?Frontiers in psychiatry · 2024Article
- Why it is hard to use PROMs and PREMs in routine health and care.BMJ open quality · 2023Review
- Assessment of Stakeholder Perceptions and Cost of Implementing a Telemedicine Specialty Program at Correctional Facilities in North Carolina.The Permanente journal · 2023Article
- The Development, Validity, and Responsiveness of a Patient-Centred Outcome Measurement Tool for Evaluating Integrative Medicine Interventions.International journal of therapeutic massage & bodywork · 2023Article
- Differences in Perception of Healthcare Management between Patients and Professionals.International journal of environmental research and public health · 2023Article
- European Society for Organ Transplantation (ESOT) Consensus Statement on Outcome Measures in Liver Transplantation According to Value-Based Health Care.Transplant international : official journal of the European Society for Organ Transplantation · 2023Article
- Patient and Provider Recommendations for Improved Telemedicine User Experience in Primary Care: A Multi-Center Qualitative Study.Telemedicine reports · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionHealth and care systems are complex and multifaceted, but most person-reported outcome and experience measures (PROMs and PREMs) address just one aspect. Multiple aspects need measuring to understand how what we do impacts patients, staff and services, and how these are affected by external factors. This needs survey tools that measure what people want, are valid, sensitive, quick and easy to use, and suitable for people with multiple conditions.
methodsWe have developed a coherent family of short generic PROMs and PREMs that can be used in combination in a pick-and-mix way. Each measure has evolved iteratively over several years, based on literature review, user inputs and field testing. Each has has a common format with four items with four response options and is designed for digital data collection with standardised analytics and data visualisation tools. We focused on brevity and low reading age.
resultsThe results are presented in tabular format and as a taxonomy. The taxonomy is categorised by respondent type (patient or staff) and measure type. PROMs have subdomains: quality of life, individual care and community; PREMs have subdomains: service provided, provider culture and innovation. We show 22 patient-reported measures and 17 staff-reported measures. Previously published measures have been validated. Others are described for the first time. DISCUSSION AND
conclusionsThis family of measures is broad in scope but is not claimed to be comprehensive. Measures share a common look and feel, which enables common methods of data collection, reporting and data visualisation. They are used in service evaluation, quality improvement and as key performance indicators. The taxonomy helps to organise the whole, explain what each measure does and identify gaps and overlaps.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.