Evidence map›Paper›PMID 32197633›Full record

ArticleHealth and quality of life outcomes2020

Analyzing the situation of older family caregivers with a focus on health-related quality of life and pain: a cross-sectional cohort study.

Cecilia Fagerström, Sölve Elmståhl, Lena Sandin Wranker

Open access · goldAbstract readMulticenter Study
In one paragraph

Article in Health and quality of life outcomes, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.

0numbers the graph read from it
0cells of the map it votes in
19citing papers in PubMed
4.7field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

19 citing papers in PubMed, 48 citations in OpenAlex.

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  7. Dyadic Comparison of Pain and Stress in Alzheimer's Disease and Caregivers.Pain management nursing : official journal of the American Society of Pain Management Nurses · 2025
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  13. The impact of care-recipient relationship type on health-related quality of life in community-dwelling older adults with dementia and their informal caregivers.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022
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  16. Socioeconomic Determinants of Health-Related Quality of Life of Entrepreneurs. A Cross-Sectional Study.International journal of environmental research and public health · 2021
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  17. Relationship of Perceived Social Support with Mental Health in Older Caregivers.International journal of environmental research and public health · 2020
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 2 institutions in 1 country.

Cecilia FagerströmBlekinge Center of Competence, Karlskrona, Sweden. cecilia.fagerstrom@lnu.se.
Sölve ElmståhlDivision of Geriatric Medicine, Department of Clinical Sciences, Lund University, Lund, Sweden.
Lena Sandin WrankerDivision of Geriatric Medicine, Department of Health Sciences, Lund University, Lund, Sweden.
Lund University · SERegion Blekinge · SE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundFor a significant proportion of the older population, increasing age is associated with health problems and worsening health. Older family caregivers are largely responsible for care of next-of-kin living at home, which impacts their own physical and mental health both positively and negatively. However, evidence is insufficient regarding the health situation of older caregivers. The aim of this study was to investigate health-related quality of life (HRQoL) and pain, and their associations, among caregivers aged ≥60 years.

methodsThe participants (n = 3444) were recruited from the Swedish National Study on Aging and Care-Blekinge and Good Aging in Skåne during 2001-2004. Participants aged ≥60 years were selected randomly and underwent cognitive tests, with demographic information obtained through questionnaires. The response rate was 60%. A predefined research protocol was used. HRQoL was measured with the Short-Form Health Survey, dimension mental health. Logistic regression models were used to investigate the associations between HRQoL and pain as well as control factors.

resultsFamily caregiving was reported by 395 (11.5%) of the participants, and 56.7% of the caregivers reported pain. Family caregivers reported lower pain intensity on the Visual Analogue Scale and were younger, on median, than non-caregivers. Irrespective of caregiver status, pain was associated with mental HRQoL. Concerns about personal health and financial status had the strongest associations with mental HRQOL in both groups, but the levels were higher among caregivers.

conclusionPain was one factor associated with low HRQoL regardless of family caregiver status and remained important when controlling for factors related to advanced age. This finding remained among family caregivers, though they reported lower pain intensity. Factors other than pain were shown to be important to mental HRQoL and should also be taken into consideration when discussing actions for family caregivers to maintain and improve health and HRQoL. TRIAL REGISTRATION NUMBER: Not applicable.

Indexed as

Quality of LifeAgedAged, 80 and overCaregiversCase-Control StudiesCross-Sectional StudiesFemaleHumansLongitudinal StudiesMaleMiddle AgedPainPain MeasurementSurveys and QuestionnairesBeing worriedFamily caregiversHealth-related quality of lifeOlder peoplePain

Identifiers

PMID32197633
PMCPMC7082916
OpenAlexW3012585104

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.