Evidence map›Paper›PMID 32194060›Full record

ArticleChest2020

Association Between Participant Contact Attempts and Reports of Being Bothered in a National, Longitudinal Cohort Study of ARDS Survivors.

Michelle N Eakin, Thomas Eckmann, Victor D Dinglas, Ayodele A Akinremi, Megan Hosey, Ramona O Hopkins, Dale M Needham

Abstract read

In one paragraph

Article in Chest, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it

0cells of the map it votes in

6citing papers in PubMed

–field-weighted citation impact

1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

A Multi-Modal Mobile Phone-Based Communication Strategy to Maximize Retention in a Post-Intensive Care Follow-up Study of Acute Respiratory Distress Syndrome Survivors.Research square · 2026
Article
Associations Between Physical Function and Physical Activity in Individuals With Chronic Ankle Instability: An Exploratory Prospective Study.Translational sports medicine · 2026
Article
Factors Associated with Attrition in a Longitudinal Cohort of Older Adults in the Community.Chronic obstructive pulmonary diseases (Miami, Fla.) · 2023
Article
Peritraumatic Stress Symptoms during Early Post-Intensive Care Unit Recovery.Annals of the American Thoracic Society · 2021
Article
Optimizing a self-directed mobile mindfulness intervention for improving cardiorespiratory failure survivors' psychological distress (LIFT2): Design and rationale of a randomized factorial experimental clinical trial.Contemporary clinical trials · 2020
Article
Participant retention in trauma intensive care unit (ICU) follow-up studies: a post-hoc analysis of a previous scoping review.Trauma surgery & acute care open · 2020
Article

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Michelle N EakinDivision of Pulmonary and Critical Care Medicine, Johns Hopkins University, Baltimore, MD; Outcomes After Critical Illness and Surgery (OACIS), Johns Hopkins University, Baltimore, MD. Electronic address: Meakin1@jhmi.edu.

Thomas EckmannDivision of Pulmonary and Critical Care Medicine, Johns Hopkins University, Baltimore, MD.

Victor D DinglasDivision of Pulmonary and Critical Care Medicine, Johns Hopkins University, Baltimore, MD; Outcomes After Critical Illness and Surgery (OACIS), Johns Hopkins University, Baltimore, MD.

Ayodele A AkinremiOutcomes After Critical Illness and Surgery (OACIS), Johns Hopkins University, Baltimore, MD; Department of Physical Medicine & Rehabilitation, Johns Hopkins University, Baltimore, MD.

Megan HoseyOutcomes After Critical Illness and Surgery (OACIS), Johns Hopkins University, Baltimore, MD; Department of Physical Medicine & Rehabilitation, Johns Hopkins University, Baltimore, MD.

Ramona O HopkinsPsychology Department and Neuroscience Center, Brigham Young University, Provo, UT; Pulmonary and Critical Care Medicine, Intermountain Healthcare, Murray, UT; Center for Humanizing Critical Care, Intermountain Healthcare, Murray, UT.

Dale M NeedhamDivision of Pulmonary and Critical Care Medicine, Johns Hopkins University, Baltimore, MD; Outcomes After Critical Illness and Surgery (OACIS), Johns Hopkins University, Baltimore, MD; Department of Physical Medicine & Rehabilitation, Johns Hopkins University, Baltimore, MD; School of Nursing, Johns Hopkins University, Baltimore, MD.

Funding

Improving Long-Term Outcomes Clinical Research for Acute Respiratory FailureR24HL111895 · NHLBI · JOHNS HOPKINS UNIVERSITY · PI NEEDHAM, DALE MURRAY · 2013 to 2017

$5.4M

Improving Long-Term Physical and Mental Health after Acute Lung InjuryR01HL088045 · NHLBI · JOHNS HOPKINS UNIVERSITY · PI NEEDHAM, DALE MURRAY, PRONOVOST, PETER J. · 2008 to 2011

$3.1M

Patient Outcomes 6 and 12 Months After ALTA, OMEGA and EDEN ARDS Network TrialsR01HL091760 · NHLBI · JOHNS HOPKINS UNIVERSITY · PI HOPKINS, RAMONA O, NEEDHAM, DALE MURRAY · 2008 to 2011

$2.0M

Biomakers in Sickle Cell Anemia: Response to HydroxyureaR01HL073944 · NHLBI · THOMAS JEFFERSON UNIVERSITY · PI STUART, MARIE J. · 2003 to 2004

$772k

NHLBI NIH HHS R01 HL073944NHLBI NIH HHS R01 HL088045NHLBI NIH HHS R01 HL091760NHLBI NIH HHS R24 HL111895

6 · The paper itself

Abstract

backgroundParticipant retention is a major challenge in clinical research, especially in studies with multiple, longitudinal research assessments. Despite the importance of retention methods, there is little empirical research on how cohort retention efforts are perceived by study participants. RESEARCH QUESTION: To evaluate the association between the number of attempts undertaken to contact participants for research assessments in a longitudinal cohort study and participants' feeling of being bothered regarding such contact attempts. STUDY DESIGN AND

methodsSecondary analysis of 315 ARDS survivors participating in a prospective study using comprehensive strategies for participant follow-up at 6 and 12 months that achieved > 95% participant retention. After completing a 242-question research assessment lasting 20 to 40 min, participants were surveyed for feedback.

resultsAt 6 and 12 months, only 5% and 8% of participants, respectively, reported being bothered "more than a little bit" by the study contact attempts, with an OR of 1.06 (95% CI, 1.02-1.10) for each contact attempt. Participants' mental health symptoms at follow-up assessment were not associated with reports of being bothered.

interpretationComprehensive cohort retention efforts can achieve > 95% retention rates in a national longitudinal study, with most participants reporting little or no bother by contact attempts. Despite a high frequency of mental health symptoms in this population, such symptoms were not associated with participant feedback regarding contact attempts. Careful training of research staff may be important in achieving such results.

Indexed as

AftercareAdultCommunicationFemaleHumansLongitudinal StudiesMaleMiddle AgedProfessional-Patient RelationsRespiratory Distress SyndromeSurveys and QuestionnairesSurvivorsARDSclinical trial protocollongitudinal studyparticipant burdenretention

Identifiers

PMID32194060

DOI10.1016/j.chest.2020.02.050

PMCPMC7417374

What OpenQuestion holds

Textmetadata

Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.