Evidence map›Paper›PMID 32192528›Full record

ReviewArthritis research & therapy2020

A Canadian evaluation framework for quality improvement in childhood arthritis: key performance indicators of the process of care.

Claire E H Barber, Marinka Twilt, Tram Pham, Gillian R Currie, Susanne Benseler, Rae S M Yeung, Michelle Batthish, Nicholas Blanchette, Jaime Guzman, Bianca Lang and 8 more

Open access · goldAbstract readReview
PubMed Full text at PMC Publisher
In one paragraph

Review in Arthritis research & therapy, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
2.0field-weighted citation impact, top 12% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 20 citations in OpenAlex.

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  8. Evaluating Research Centers in Minority Institutions: Framework, Metrics, Best Practices, and Challenges.International journal of environmental research and public health · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors at 7 institutions in 1 country.

Claire E H BarberDepartment of Medicine, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Marinka TwiltDepartment of Pediatrics, Alberta Children's Hospital, Cumming School of Medicine, and Alberta Children's Hospital Research Institute, University of Calgary, Calgary, AB, Canada.
Tram PhamDepartment of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Gillian R CurrieDepartment of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Susanne BenselerDepartment of Pediatrics, Alberta Children's Hospital, Cumming School of Medicine, and Alberta Children's Hospital Research Institute, University of Calgary, Calgary, AB, Canada.
Rae S M YeungDepartments of Pediatrics, Immunology and Medical Science, University of Toronto, Toronto, ON, Canada.
Michelle BatthishDepartment of Pediatrics, McMaster University and McMaster Children's Hospital, Hamilton, ON, Canada.
Nicholas BlanchetteThe Hospital for Sick Children, Toronto, ON, Canada.
Jaime GuzmanDepartment of Medicine, University of British Columbia, Vancouver, BC, Canada.
Bianca LangDepartment of Pediatrics, Dalhousie University, Halifax, NS, Canada.
Claire LeBlancDepartment of Pediatrics, McGill University, Montreal, QC, Canada.
Deborah M LevyDepartments of Pediatrics, Immunology and Medical Science, University of Toronto, Toronto, ON, Canada.
Christine O'BrienThe Hospital for Sick Children, Toronto, ON, Canada.
Heinrike SchmelingDepartment of Pediatrics, Alberta Children's Hospital, Cumming School of Medicine, and Alberta Children's Hospital Research Institute, University of Calgary, Calgary, AB, Canada.
Gordon SoonThe Hospital for Sick Children, Toronto, ON, Canada.
Lynn SpiegelThe Hospital for Sick Children, Toronto, ON, Canada.
Kristi WhitneyThe Hospital for Sick Children, Toronto, ON, Canada.
Deborah A MarshallDepartment of Medicine, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada. Damarsha@ucalgary.ca.
Hospital for Sick Children · CAUniversity of Calgary · CAAlberta Children's Hospital · CADalhousie University · CAMcGill University · CAMcMaster University · CAUniversity of British Columbia · CA

Funding

Canada Research Chair (Health Systems and Services Research, 2008-2018) and the Arthur J.E. Child Chair in Rheumatology Research. NoneGenome Canada, Ontario Genomics, Genome Alberta, the Ontario Ministry of Economic Development, Job Creation and Trade; The Arthritis Society, Alberta Children's Hospital Research Institute, University of Calgary, UCAN Utrecht, and the Hospital for Sick Chi None
6 · The paper itself

Abstract

backgroundThe evaluation of quality of care in juvenile idiopathic arthritis (JIA) is critical for advancing patient outcomes but is not currently part of routine care across all centers in Canada. The study objective is to review the current landscape of JIA quality measures and use expert panel consensus to define key performance indicators (KPIs) that are important and feasible to collect for routine monitoring in JIA care in Canada.

methodsThirty-seven candidate KPIs identified from a systematic review were reviewed for inclusion by a working group including 3 pediatric rheumatologists. A shortlist of 14 KPIs was then assessed using a 3-round modified Delphi panel based on the RAND/UCLA Appropriateness Method. Ten panelists across Canada participated based on their expertise in JIA, quality measurement, or lived experience as a parent of a child with JIA. During rounds 1 and 3, panelists rated each KPI on a 1-9 Likert scale on themes of importance, feasibility, and priority. In round 2, panelists participated in a moderated in-person discussion that resulted in minor modifications to some KPIs. KPIs with median scores of ≥ 7 on all 3 questions without disagreement were included in the framework.

resultsTen KPIs met the criteria for inclusion after round 3. Five KPIs addressed patient assessments: pain, joint count, functional status, global assessment of disease activity, and the clinical Juvenile Arthritis Disease Activity Score (cJADAS). Three KPIs examined access to care: wait times for consultation, access to pediatric rheumatologists within 1 year of diagnosis, and frequency of clinical follow-up. Safety was addressed through KPIs on tuberculous screening and laboratory monitoring. KPIs examining functional status using the Childhood Health Assessment Questionnaire (CHAQ), quality of life, uveitis, and patient satisfaction were excluded due to concerns about feasibility of measurement.

conclusionsThe proposed KPIs build upon existing KPIs and address important processes of care that should be measured to improve the quality of JIA care. The feasibility of capturing these measures will be tested in various data sources including the Understanding Childhood Arthritis Network (UCAN) studies. Subsequent work should focus on development of meaningful outcome KPIs to drive JIA quality improvement in Canada and beyond.

Indexed as

Quality of LifeArthritis, JuvenileCanadaChildConsensusDelphi TechniqueHumansQuality ImprovementQuality Indicators, Health CareSystematic Reviews as TopicJuvenile idiopathic arthritisQuality improvementQuality indicatorsQuality of care

Identifiers

PMID32192528
PMCPMC7083048
OpenAlexW3012475239

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.